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An Innovative Lab-Based Training Program to Help Patient Groups Understand Their Disease and the Research Process

Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow “trainees” to better understand their disease and the biomedi...

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Detalles Bibliográficos
Autores principales: Mathieu, Marion, Hammond, Constance, Karlin, David G.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4323103/
https://www.ncbi.nlm.nih.gov/pubmed/25668201
http://dx.doi.org/10.1371/journal.pbio.1002067
Descripción
Sumario:Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow “trainees” to better understand their disease and the biomedical research process, and strengthen links between patients and local researchers. Over the past decade, we and our partner institutes have received more than 900 French patients, with the participation of over 60 researchers and clinicians.