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Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease
BACKGROUND: Improvements in health care for children with chronic diseases must be informed by research that emphasizes outcomes of importance to patients and families. To support a program of research in the field of rare inborn errors of metabolism (IEM), we conducted a broad scoping review of pri...
Autores principales: | , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4334411/ https://www.ncbi.nlm.nih.gov/pubmed/25886474 http://dx.doi.org/10.1186/s12887-015-0323-x |