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Cysteamine (Cystagon®) adherence in patients with cystinosis in Spain: successful in children and a challenge in adolescents and adults
BACKGROUND: Cysteamine has improved survival and prognosis in cystinosis. Increasing numbers of patients reach adulthood and face new challenges such as compliance that wanes over time. The aim of this study was to evaluate adherence to cysteamine treatment in a group of cystinotic patients in Spain...
Autores principales: | Ariceta, Gema, Lara, Enrique, Camacho, Juan A., Oppenheimer, Federico, Vara, Julia, Santos, Fernando, Muñoz, Miguel Angel, Cantarell, Carmen, Gil Calvo, Marta, Romero, Rafael, Valenciano, Blanca, García-Nieto, Víctor, Sanahuja, Maria José, Crespo, José, Justa, Maria Luisa, Urisarri, Adela, Bedoya, Rafael, Bueno, Alberto, Daza, Antonio, Bravo, Juan, Llamas, Francisco, Jiménez del Cerro, Luis Antonio |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4339688/ https://www.ncbi.nlm.nih.gov/pubmed/25348508 http://dx.doi.org/10.1093/ndt/gfu329 |
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