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Adult care for Duchenne muscular dystrophy in the UK
Survival in Duchenne muscular dystrophy (DMD) has increased in recent years due to iterative improvements in care. We describe the results of the CARE-NMD survey of care practices for adults with DMD in the UK in light of international consensus care guidelines. We also compare the UK experience of...
Autores principales: | Rodger, Sunil, Woods, Katherine L., Bladen, Catherine L., Stringer, Angela, Vry, Julia, Gramsch, Kathrin, Kirschner, Janbernd, Thompson, Rachel, Bushby, Katharine, Lochmüller, Hanns |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Berlin Heidelberg
2014
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4363521/ https://www.ncbi.nlm.nih.gov/pubmed/25536903 http://dx.doi.org/10.1007/s00415-014-7585-3 |
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