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The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations

BACKGROUND: The Community Health Applied Research Network, funded by the Health Resources and Services Administration, is a research network comprising 18 Community Health Centers organized into four Research Nodes (each including an academic partner) and a data coordinating center. The network repr...

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Autores principales: Laws, Reesa, Gillespie, Suzanne, Puro, Jon, Van Rompaey, Stephan, Quach, Thu, Carroll, Joseph, Weir, Rosy Chang, Crawford, Phil, Grasso, Chris, Kaleba, Erin, McBurnie, Mary Ann
Formato: Online Artículo Texto
Lenguaje:English
Publicado: AcademyHealth 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4371501/
https://www.ncbi.nlm.nih.gov/pubmed/25848623
http://dx.doi.org/10.13063/2327-9214.1097
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author Laws, Reesa
Gillespie, Suzanne
Puro, Jon
Van Rompaey, Stephan
Quach, Thu
Carroll, Joseph
Weir, Rosy Chang
Crawford, Phil
Grasso, Chris
Kaleba, Erin
McBurnie, Mary Ann
author_facet Laws, Reesa
Gillespie, Suzanne
Puro, Jon
Van Rompaey, Stephan
Quach, Thu
Carroll, Joseph
Weir, Rosy Chang
Crawford, Phil
Grasso, Chris
Kaleba, Erin
McBurnie, Mary Ann
author_sort Laws, Reesa
collection PubMed
description BACKGROUND: The Community Health Applied Research Network, funded by the Health Resources and Services Administration, is a research network comprising 18 Community Health Centers organized into four Research Nodes (each including an academic partner) and a data coordinating center. The network represents more than 500,000 diverse safety net patients across 11 states. OBJECTIVE: The primary objective of this paper is to describe the development and implementation process of the CHARN data warehouse. METHODS: The methods involved regulatory and governance development and approval, development of content and structure of the warehouse and processes for extracting the data locally, performing validation, and finally submitting data to the data coordinating center. PROGRESS TO DATE: Version 1 of the warehouse has been developed. Tables have been added, the population and the years of electronic health records (EHR) have been expanded for Version 2. CONCLUSIONS: It is feasible to create a national, centralized data warehouse with multiple Community Health Center partners using different EHR systems. It is essential to allow sufficient time: (1) to develop collaborative, trusting relationships among new partners with varied technology, backgrounds, expertise, and interests; (2) to complete institutional, business, and regulatory review processes; (3) to identify and address technical challenges associated with diverse data environments, practices, and resources; and (4) to provide continuing data quality assessments to ensure data accuracy.
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spelling pubmed-43715012015-04-06 The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations Laws, Reesa Gillespie, Suzanne Puro, Jon Van Rompaey, Stephan Quach, Thu Carroll, Joseph Weir, Rosy Chang Crawford, Phil Grasso, Chris Kaleba, Erin McBurnie, Mary Ann EGEMS (Wash DC) Learning Health System BACKGROUND: The Community Health Applied Research Network, funded by the Health Resources and Services Administration, is a research network comprising 18 Community Health Centers organized into four Research Nodes (each including an academic partner) and a data coordinating center. The network represents more than 500,000 diverse safety net patients across 11 states. OBJECTIVE: The primary objective of this paper is to describe the development and implementation process of the CHARN data warehouse. METHODS: The methods involved regulatory and governance development and approval, development of content and structure of the warehouse and processes for extracting the data locally, performing validation, and finally submitting data to the data coordinating center. PROGRESS TO DATE: Version 1 of the warehouse has been developed. Tables have been added, the population and the years of electronic health records (EHR) have been expanded for Version 2. CONCLUSIONS: It is feasible to create a national, centralized data warehouse with multiple Community Health Center partners using different EHR systems. It is essential to allow sufficient time: (1) to develop collaborative, trusting relationships among new partners with varied technology, backgrounds, expertise, and interests; (2) to complete institutional, business, and regulatory review processes; (3) to identify and address technical challenges associated with diverse data environments, practices, and resources; and (4) to provide continuing data quality assessments to ensure data accuracy. AcademyHealth 2014-10-14 /pmc/articles/PMC4371501/ /pubmed/25848623 http://dx.doi.org/10.13063/2327-9214.1097 Text en All eGEMs publications are licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 License http://creativecommons.org/licenses/by-nc-nd/3.0/
spellingShingle Learning Health System
Laws, Reesa
Gillespie, Suzanne
Puro, Jon
Van Rompaey, Stephan
Quach, Thu
Carroll, Joseph
Weir, Rosy Chang
Crawford, Phil
Grasso, Chris
Kaleba, Erin
McBurnie, Mary Ann
The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations
title The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations
title_full The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations
title_fullStr The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations
title_full_unstemmed The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations
title_short The Community Health Applied Research Network (CHARN) Data Warehouse: a Resource for Patient-Centered Outcomes Research and Quality Improvement in Underserved, Safety Net Populations
title_sort community health applied research network (charn) data warehouse: a resource for patient-centered outcomes research and quality improvement in underserved, safety net populations
topic Learning Health System
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4371501/
https://www.ncbi.nlm.nih.gov/pubmed/25848623
http://dx.doi.org/10.13063/2327-9214.1097
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