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Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report

Duchenne muscular dystrophy is a progressive genetic disease with no cure at present. Children suffering from this disease eventually become wheelchair bound and die in their late teens. Paediatricians caring for the child with Duchenne Muscular Dystrophy in resource poor settings face a lot challen...

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Detalles Bibliográficos
Autores principales: Odinaka, Kelechi Kenneth, Nwolisa, Emeka Charles
Formato: Online Artículo Texto
Lenguaje:English
Publicado: The African Field Epidemiology Network 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4377095/
https://www.ncbi.nlm.nih.gov/pubmed/25838855
http://dx.doi.org/10.11604/pamj.2014.19.227.3137
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author Odinaka, Kelechi Kenneth
Nwolisa, Emeka Charles
author_facet Odinaka, Kelechi Kenneth
Nwolisa, Emeka Charles
author_sort Odinaka, Kelechi Kenneth
collection PubMed
description Duchenne muscular dystrophy is a progressive genetic disease with no cure at present. Children suffering from this disease eventually become wheelchair bound and die in their late teens. Paediatricians caring for the child with Duchenne Muscular Dystrophy in resource poor settings face a lot challenges. These challenges include: poverty, inadequate multidisciplinary care, emotional burn-out of parents and lack of facilities for dystrophin assay or genetic testing.
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spelling pubmed-43770952015-04-02 Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report Odinaka, Kelechi Kenneth Nwolisa, Emeka Charles Pan Afr Med J Case Report Duchenne muscular dystrophy is a progressive genetic disease with no cure at present. Children suffering from this disease eventually become wheelchair bound and die in their late teens. Paediatricians caring for the child with Duchenne Muscular Dystrophy in resource poor settings face a lot challenges. These challenges include: poverty, inadequate multidisciplinary care, emotional burn-out of parents and lack of facilities for dystrophin assay or genetic testing. The African Field Epidemiology Network 2014-10-30 /pmc/articles/PMC4377095/ /pubmed/25838855 http://dx.doi.org/10.11604/pamj.2014.19.227.3137 Text en © Kelechi Kenneth Odinaka et al. http://creativecommons.org/licenses/by/2.0/ The Pan African Medical Journal - ISSN 1937-8688. This is an Open Access article distributed under the terms of the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Case Report
Odinaka, Kelechi Kenneth
Nwolisa, Emeka Charles
Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report
title Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report
title_full Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report
title_fullStr Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report
title_full_unstemmed Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report
title_short Challenges in the management of the child with Duchenne muscular dystrophy in a resource poor setting:a case report
title_sort challenges in the management of the child with duchenne muscular dystrophy in a resource poor setting:a case report
topic Case Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4377095/
https://www.ncbi.nlm.nih.gov/pubmed/25838855
http://dx.doi.org/10.11604/pamj.2014.19.227.3137
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