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A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care

The lifespan of patients with sickle-cell disease (SCD) continues to increase, and most affected individuals in high-resource countries now live into adulthood. This necessitates a successful transition from pediatric to adult health care. Care for transitioning patients with SCD often falls to prim...

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Detalles Bibliográficos
Autores principales: Crosby, Lori E., Quinn, Charles T., Kalinyak, Karen A.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4415939/
https://www.ncbi.nlm.nih.gov/pubmed/25832469
http://dx.doi.org/10.1007/s12325-015-0197-1
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author Crosby, Lori E.
Quinn, Charles T.
Kalinyak, Karen A.
author_facet Crosby, Lori E.
Quinn, Charles T.
Kalinyak, Karen A.
author_sort Crosby, Lori E.
collection PubMed
description The lifespan of patients with sickle-cell disease (SCD) continues to increase, and most affected individuals in high-resource countries now live into adulthood. This necessitates a successful transition from pediatric to adult health care. Care for transitioning patients with SCD often falls to primary care providers who may not be fully aware of the many challenges and issues faced by patients and the current management strategies for SCD. In this review, we aim to close the knowledge gap between primary care providers and specialists who treat transitioning patients with SCD. We describe the challenges and issues encountered by these patients, and we propose a biopsychosocial multidisciplinary approach to the management of the identified issues. Examples of this approach, such as transition-focused integrated care models and quality improvement collaboratives, with the potential to improve health outcomes in adulthood are also described. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1007/s12325-015-0197-1) contains supplementary material, which is available to authorized users.
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spelling pubmed-44159392015-05-02 A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care Crosby, Lori E. Quinn, Charles T. Kalinyak, Karen A. Adv Ther Review The lifespan of patients with sickle-cell disease (SCD) continues to increase, and most affected individuals in high-resource countries now live into adulthood. This necessitates a successful transition from pediatric to adult health care. Care for transitioning patients with SCD often falls to primary care providers who may not be fully aware of the many challenges and issues faced by patients and the current management strategies for SCD. In this review, we aim to close the knowledge gap between primary care providers and specialists who treat transitioning patients with SCD. We describe the challenges and issues encountered by these patients, and we propose a biopsychosocial multidisciplinary approach to the management of the identified issues. Examples of this approach, such as transition-focused integrated care models and quality improvement collaboratives, with the potential to improve health outcomes in adulthood are also described. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1007/s12325-015-0197-1) contains supplementary material, which is available to authorized users. Springer Healthcare 2015-04-02 2015 /pmc/articles/PMC4415939/ /pubmed/25832469 http://dx.doi.org/10.1007/s12325-015-0197-1 Text en © The Author(s) 2015 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution Noncommercial License which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited.
spellingShingle Review
Crosby, Lori E.
Quinn, Charles T.
Kalinyak, Karen A.
A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care
title A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care
title_full A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care
title_fullStr A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care
title_full_unstemmed A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care
title_short A Biopsychosocial Model for the Management of Patients With Sickle-Cell Disease Transitioning to Adult Medical Care
title_sort biopsychosocial model for the management of patients with sickle-cell disease transitioning to adult medical care
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4415939/
https://www.ncbi.nlm.nih.gov/pubmed/25832469
http://dx.doi.org/10.1007/s12325-015-0197-1
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