Cargando…

Using Community-Based Participatory Research Principles to Develop More Understandable Recruitment and Informed Consent Documents in Genomic Research

BACKGROUND: Heart Healthy Lenoir is a transdisciplinary project aimed at creating long-term, sustainable approaches to reduce cardiovascular disease risk disparities in Lenoir County, North Carolina using a design spanning genomic analysis and clinical intervention. We hypothesized that residents of...

Descripción completa

Detalles Bibliográficos
Autores principales:	Skinner, Harlyn G., Calancie, Larissa, Vu, Maihan B., Garcia, Beverly, DeMarco, Molly, Patterson, Cam, Ammerman, Alice, Schisler, Jonathan C.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Public Library of Science 2015
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4418607/ https://www.ncbi.nlm.nih.gov/pubmed/25938669 http://dx.doi.org/10.1371/journal.pone.0125466

Ejemplares similares

TAS2R38 Predisposition to Bitter Taste Associated with Differential Changes in Vegetable Intake in Response to a Community-Based Dietary Intervention
por: Calancie, Larissa, et al.
Publicado: (2018)

Participatory improvement of a template for informed consent documents in biobank research - study results and methodological reflections
por: Bossert, Sabine, et al.
Publicado: (2017)

Consent Builder: an innovative tool for creating research informed consent documents
por: Sward, Katherine A, et al.
Publicado: (2022)

Informed consent for MRI and fMRI research: Analysis of a sample of Canadian consent documents
por: Palmour, Nicole, et al.
Publicado: (2011)

Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents
por: Munung, Nchangwi Syntia, et al.
Publicado: (2016)

Recruiting for Epigenetic Research: Facilitating the Informed Consent Process
por: Jallo, Nancy, et al.
Publicado: (2013)

Comprehensibility of Translated Informed Consent Documents Used in Clinical Research in Psychiatry
por: Jhanwar, Venu Gopal, et al.
Publicado: (2010)

Respondent-Driven Sampling in Participatory Research Contexts: Participant-Driven Recruitment
por: Tiffany, Jennifer S.
Publicado: (2006)

Applying Community-Based Participatory Research Partnership Principles to Public Health Practice-Based Research Networks
por: Winterbauer, Nancy L., et al.
Publicado: (2016)

Improving Nursing Care Documentation in Emergency Department: A Participatory Action Research Study in Iran
por: Vafaei, Seyed Majid, et al.
Publicado: (2018)

Informed consent and research
por: Mandal, Jharna, et al.
Publicado: (2014)

Researchers, authors and consent
por: Cornock, Marc
Publicado: (2022)

REXIC Project: Retrospective Cross-Sectional Study of Documentation of Informed Consent for Research Biobanking in A Public Research and Teaching Hospital
por: Nobile, Marta, et al.
Publicado: (2013)

Participatory epidemiology: the contribution of participatory research to epidemiology
por: Bach, Mario, et al.
Publicado: (2017)

Surrogate consent for critical care research: exploratory study on public perception and influences on recruitment
por: Lim, Daphne AFN, et al.
Publicado: (2013)

Participatory action research
Publicado: (1991)

Record linkage research and informed consent: who consents?
por: Huang, Nicole, et al.
Publicado: (2007)

Consolidated Framework for Collaboration Research derived from a systematic review of theories, models, frameworks and principles for cross-sector collaboration
por: Calancie, Larissa, et al.
Publicado: (2021)

Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking
por: Joly, Yann, et al.
Publicado: (2015)

Improving Documentation of Nutritional Care in A Nursing Home: An Evaluation of A Participatory Action Research Project
por: Hestevik, Christine Hillestad, et al.
Publicado: (2019)

Ethical issues of informed consent in malaria research proposals submitted to a research ethics committee in Thailand: a retrospective document review
por: Adams, Pornpimon, et al.
Publicado: (2017)

Informed consent in medical research
por: DeRenzo, E G
Publicado: (2001)

Informed Consent in Biomedical Research
por: Dankar, Fida K., et al.
Publicado: (2019)

Research ethics, consent and publication
por: Cornock, Marc, et al.
Publicado: (2023)

Can a ‘consent to contact’ community help research teams overcome barriers to recruitment? The development and impact of the ‘Research for the Future’ community
por: Grady, Katherine, et al.
Publicado: (2019)

Recruitment principles and strategies for supportive care research in pediatric oncology
por: Bradford, Natalie, et al.
Publicado: (2021)

Participatory research: real or imagined
por: Rose, Diana
Publicado: (2018)

Impact in Participatory Health Research
por: Wright, Michael T., et al.
Publicado: (2018)

Recruiting Low-Income African American Men in Mental Health Research: A Community-Based Participatory Research Feasibility Study
por: Tchouankam, Tatiana, et al.
Publicado: (2021)

Impact of Participatory Health Research: A Test of the Community-Based Participatory Research Conceptual Model
por: Oetzel, John G., et al.
Publicado: (2018)

Informed consent in randomised controlled trials: further development and evaluation of the participatory and informed consent (PIC) measure
por: Wade, Julia, et al.
Publicado: (2023)

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research
por: Gainotti, Sabina, et al.
Publicado: (2016)

Research recruitment and consent methods in a pandemic: a qualitative study of COVID-19 patients’ perspectives
por: Small, Serena S, et al.
Publicado: (2023)

African Primary Care Research: Participatory action research
por: Mash, Bob
Publicado: (2014)

The informed consent form navigator: a tool for producing readable and compliant consent documents
por: Bona, Jonathan P., et al.
Publicado: (2022)

Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy
por: Longstaff, Holly, et al.
Publicado: (2022)

Desiderata for digital consent in genomic research
por: Parra-Calderón, Carlos Luis, et al.
Publicado: (2018)

How to obtain informed consent for research
por: Manti, Sara, et al.
Publicado: (2018)

Blockchain, consent and prosent for medical research
por: Porsdam Mann, Sebastian, et al.
Publicado: (2021)

Consent in covid: A researcher’s dilemma
por: Garg, Heena, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_32agcu6b6fr1rvf0sm6c0p8bg1