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Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes
Patient-centered approaches to disease management are consistently recognized as valuable tools for improving health outcomes, yet studies are rarely designed to elicit adolescent perspectives. This study sought to better understand the perspectives of youths with type 1 diabetes according to key de...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
American Diabetes Association
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4433084/ https://www.ncbi.nlm.nih.gov/pubmed/25987807 http://dx.doi.org/10.2337/diaspect.28.2.92 |
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author | Walker, Ashby F. Johnson, Cathryn Schatz, Desmond A. Silverstein, Janet H. Lyles, Shannon Rohrs, Henry J. |
author_facet | Walker, Ashby F. Johnson, Cathryn Schatz, Desmond A. Silverstein, Janet H. Lyles, Shannon Rohrs, Henry J. |
author_sort | Walker, Ashby F. |
collection | PubMed |
description | Patient-centered approaches to disease management are consistently recognized as valuable tools for improving health outcomes, yet studies are rarely designed to elicit adolescent perspectives. This study sought to better understand the perspectives of youths with type 1 diabetes according to key demographic variables. We conducted an exploratory study through which 40 youths were provided with disposable cameras and prompted to take five photographs each that captured what diabetes meant to them and to provide narratives to accompany their photo choices. Demographic variables examined included sex, age, disease duration, socioeconomic status (SES), race, and glycemic control (A1C). Content analysis was used for photos and open-ended responses to assign photo index scores, which were then analyzed by demographic variables using Mann-Whitney U tests for statistical significance. Analysis of photos/narratives (n = 202) revealed five main types of representations depicted by at least 50% of the young people. “Challenge” photos included diabetes supplies as tethering, food as a source of frustration, and the body as a territory for disease encroachment. “Resilience” photos included coping mechanisms and symbols of resistance. Overall, these representations were consistent across demographic categories with two exceptions. Males took more food depictions than females (P <0.005) and had fewer coping depictions (P <0.05). Youths from more affluent households were more likely to take photos of resistance (P <0.05). The use of photo index scores expands previous studies using photography by comparing demographic variation within a sample. Our findings provide insight into coping strategies and indicate that SES may provide an advantage for affluent youths in meeting diabetes-specific challenges. |
format | Online Article Text |
id | pubmed-4433084 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | American Diabetes Association |
record_format | MEDLINE/PubMed |
spelling | pubmed-44330842016-05-01 Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes Walker, Ashby F. Johnson, Cathryn Schatz, Desmond A. Silverstein, Janet H. Lyles, Shannon Rohrs, Henry J. Diabetes Spectr Feature Article Patient-centered approaches to disease management are consistently recognized as valuable tools for improving health outcomes, yet studies are rarely designed to elicit adolescent perspectives. This study sought to better understand the perspectives of youths with type 1 diabetes according to key demographic variables. We conducted an exploratory study through which 40 youths were provided with disposable cameras and prompted to take five photographs each that captured what diabetes meant to them and to provide narratives to accompany their photo choices. Demographic variables examined included sex, age, disease duration, socioeconomic status (SES), race, and glycemic control (A1C). Content analysis was used for photos and open-ended responses to assign photo index scores, which were then analyzed by demographic variables using Mann-Whitney U tests for statistical significance. Analysis of photos/narratives (n = 202) revealed five main types of representations depicted by at least 50% of the young people. “Challenge” photos included diabetes supplies as tethering, food as a source of frustration, and the body as a territory for disease encroachment. “Resilience” photos included coping mechanisms and symbols of resistance. Overall, these representations were consistent across demographic categories with two exceptions. Males took more food depictions than females (P <0.005) and had fewer coping depictions (P <0.05). Youths from more affluent households were more likely to take photos of resistance (P <0.05). The use of photo index scores expands previous studies using photography by comparing demographic variation within a sample. Our findings provide insight into coping strategies and indicate that SES may provide an advantage for affluent youths in meeting diabetes-specific challenges. American Diabetes Association 2015-05 /pmc/articles/PMC4433084/ /pubmed/25987807 http://dx.doi.org/10.2337/diaspect.28.2.92 Text en © 2015 by the American Diabetes Association. Readers may use this article as long as the work is properly cited, the use is educational and not for profit, and the work is not altered. See http://creativecommons.org/licenses/by-nc-nd/3.0 for details. |
spellingShingle | Feature Article Walker, Ashby F. Johnson, Cathryn Schatz, Desmond A. Silverstein, Janet H. Lyles, Shannon Rohrs, Henry J. Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes |
title | Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes |
title_full | Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes |
title_fullStr | Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes |
title_full_unstemmed | Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes |
title_short | Using Photography as a Method to Explore Adolescent Challenges and Resilience in Type 1 Diabetes |
title_sort | using photography as a method to explore adolescent challenges and resilience in type 1 diabetes |
topic | Feature Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4433084/ https://www.ncbi.nlm.nih.gov/pubmed/25987807 http://dx.doi.org/10.2337/diaspect.28.2.92 |
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