Cargando…

“The One Who Chases You Away Does Not Tell You Go”: Silent Refusals and Complex Power Relations in Research Consent Processes in Coastal Kenya

Consent processes have attracted significant research attention over the last decade, including in the global south. Although relevant studies suggest consent is a complex negotiated process involving multiple actors, most guidelines assume consent is a one-off encounter with a clear ‘yes’ or ‘no’ d...

Descripción completa

Detalles Bibliográficos
Autores principales:	Kamuya, Dorcas M., Theobald, Sally J., Marsh, Vicki, Parker, Michael, Geissler, Wenzel P., Molyneux, Sassy C.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Public Library of Science 2015
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4433355/ https://www.ncbi.nlm.nih.gov/pubmed/25978465 http://dx.doi.org/10.1371/journal.pone.0126671

Ejemplares similares

ENGAGING COMMUNITIES TO STRENGTHEN RESEARCH ETHICS IN LOW-INCOME SETTINGS: SELECTION AND PERCEPTIONS OF MEMBERS OF A NETWORK OF REPRESENTATIVES IN COASTAL KENYA
por: Kamuya, Dorcas M, et al.
Publicado: (2013)

Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya
por: Marsh, Vicki M, et al.
Publicado: (2010)

‘All her children are born that way’: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya
por: Marsh, Vicki M., et al.
Publicado: (2011)

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement
por: Jao, Irene, et al.
Publicado: (2015)

Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya
por: Marsh, Vicki, et al.
Publicado: (2008)

EVOLVING FRIENDSHIPS AND SHIFTING ETHICAL DILEMMAS: FIELDWORKERS' EXPERIENCES IN A SHORT TERM COMMUNITY BASED STUDY IN KENYA
por: Kamuya, Dorcas M, et al.
Publicado: (2013)

FIELD WORKERS AT THE INTERFACE
por: Molyneux, Sassy, et al.
Publicado: (2013)

WORKING WITH COMMUNITY HEALTH WORKERS AS ‘VOLUNTEERS’ IN A VACCINE TRIAL: PRACTICAL AND ETHICAL EXPERIENCES AND IMPLICATIONS
por: Angwenyi, Vibian, et al.
Publicado: (2013)

Benefits in Cash or in Kind? A Community Consultation on Types of Benefits in Health Research on the Kenyan Coast
por: Njue, Maureen, et al.
Publicado: (2015)

“When they see us, it’s like they have seen the benefits!”: experiences of study benefits negotiations in community-based studies on the Kenyan Coast
por: Kamuya, Dorcas M, et al.
Publicado: (2014)

Complex realities: community engagement for a paediatric randomized controlled malaria vaccine trial in Kilifi, Kenya
por: Angwenyi, Vibian, et al.
Publicado: (2014)

“You’ll Be Chased Away”: Sources, Experiences, and Effects of Violence and Stigma among Gay and Bisexual Men in Kenya
por: Lewis, Katherine A., et al.
Publicado: (2023)

What the Silent Retina Tells You: Serous Retinal Detachment in Waldenström’s Macroglobulinemia
por: Amaador, Karima, et al.
Publicado: (2021)

Strengthening the Informed Consent Process in International Health Research through Community Engagement: The KEMRI-Wellcome Trust Research Programme Experience
por: Boga, Mwanamvua, et al.
Publicado: (2011)

Incorporating a quiz into informed consent processes: Qualitative study of participants' reactions
por: Molyneux, Sassy, et al.
Publicado: (2007)

Enhancing fieldworkers’ performance management support in health research: an exploratory study on the views of field managers and fieldworkers from major research centres in Africa
por: Kombe, Francis Kazungu, et al.
Publicado: (2019)

FEEDBACK OF RESEARCH FINDINGS FOR VACCINE TRIALS: EXPERIENCES FROM TWO MALARIA VACCINE TRIALS INVOLVING HEALTHY CHILDREN ON THE KENYAN COAST
por: Gikonyo, Caroline, et al.
Publicado: (2013)

Research Stakeholders’ Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations
por: Jao, Irene, et al.
Publicado: (2015)

Tell Me Where You’ve Been and I’ll Tell You How You’ll Evolve
por: Fumasoni, Marco
Publicado: (2020)

Taking social relationships seriously: Lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast
por: Gikonyo, Caroline, et al.
Publicado: (2008)

Ethical considerations in Controlled Human Malaria Infection studies in low resource settings: Experiences and perceptions of study participants in a malaria Challenge study in Kenya
por: Njue, Maureen, et al.
Publicado: (2018)

Deliberately infecting healthy volunteers with malaria parasites: Perceptions and experiences of participants and other stakeholders in a Kenyan‐based malaria infection study
por: Jao, Irene, et al.
Publicado: (2020)

Tell me where you went, I may tell who you infected
por: Guerra, Sónia Silva, et al.
Publicado: (2022)

Since you have been away
Publicado: (1972)

Values don't change, even as you chase success
por: Huntsman, Jon M, et al.
Publicado: (2010)

Pandemic preparedness and responsiveness of research review committees: lessons from review of COVID-19 protocols at KEMRI Wellcome Trust Research Programme in Kenya
por: Hinga, Alex, et al.
Publicado: (2022)

Tell me how and where you play football and I’ll tell you how much you have to run
por: Castellano, Julen, et al.
Publicado: (2021)

Tell Me What You Eat and I Will Tell You Your Sociotype: Coping with Diabesity
por: Berry, Elliot M., et al.
Publicado: (2012)

Kenyan health stakeholder views on individual consent, general notification and governance processes for the re-use of hospital inpatient data to support learning on healthcare systems
por: Mbuthia, Daniel, et al.
Publicado: (2019)

Evolution of a programme to engage school students with health research and science in Kenya
por: Davies, Alun, et al.
Publicado: (2019)

Gendered negotiations for research participation in community-based studies: implications for health research policy and practice
por: Kamuya, Dorcas M, et al.
Publicado: (2017)

The Ombuds does not tell you everything!
por: Staff Association
Publicado: (2019)

Think twice before you tell
por: Wilde, A. A. M.
Publicado: (2014)

Think twice before you tell
por: Wilde, A. A. M.
Publicado: (2014)

Ethics and the ethnography of medical research in Africa
por: Molyneux, Sassy, et al.
Publicado: (2008)

Tell Me Who You Vote for, and I'll Tell You Who You Are? The Associations of Political Orientation With Personality and Prosocial Behavior and the Plausibility of Evolutionary Approaches
por: Grünhage, Thomas, et al.
Publicado: (2021)

A new type of coating to chase the clouds away
por: Stefania Pandolfi
Publicado: (2016)

Women with Depression—“You Can't Tell by Looking”™
por: Wilen, Jennifer M., et al.
Publicado: (2006)

Can You Tell Me where Wally Is?
por: Clarke, A D F, et al.
Publicado: (2013)

Tell me if you prefer bovine or poultry sectors and I’ll tell you who you are: Characterization of Salmonella enterica subsp. enterica serovar Mbandaka in France
por: De Sousa Violante, Madeleine, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_ios6t44lhiqqn1spn581l3ma27