Cargando…
Methodology for the development and calibration of the SCI-QOL item banks
OBJECTIVE: To develop a comprehensive, psychometrically sound, and conceptually grounded patient reported outcomes (PRO) measurement system for individuals with spinal cord injury (SCI). METHODS: Individual interviews (n = 44) and focus groups (n = 65 individuals with SCI and n = 42 SCI clinicians)...
Autores principales: | , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Maney Publishing
2015
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4445019/ https://www.ncbi.nlm.nih.gov/pubmed/26010963 http://dx.doi.org/10.1179/2045772315Y.0000000034 |
_version_ | 1782373222655721472 |
---|---|
author | Tulsky, David S. Kisala, Pamela A. Victorson, David Choi, Seung W. Gershon, Richard Heinemann, Allen W. Cella, David |
author_facet | Tulsky, David S. Kisala, Pamela A. Victorson, David Choi, Seung W. Gershon, Richard Heinemann, Allen W. Cella, David |
author_sort | Tulsky, David S. |
collection | PubMed |
description | OBJECTIVE: To develop a comprehensive, psychometrically sound, and conceptually grounded patient reported outcomes (PRO) measurement system for individuals with spinal cord injury (SCI). METHODS: Individual interviews (n = 44) and focus groups (n = 65 individuals with SCI and n = 42 SCI clinicians) were used to select key domains for inclusion and to develop PRO items. Verbatim items from other cutting-edge measurement systems (i.e. PROMIS, Neuro-QOL) were included to facilitate linkage and cross-population comparison. Items were field tested in a large sample of individuals with traumatic SCI (n = 877). Dimensionality was assessed with confirmatory factor analysis. Local item dependence and differential item functioning were assessed, and items were calibrated using the item response theory (IRT) graded response model. Finally, computer adaptive tests (CATs) and short forms were administered in a new sample (n = 245) to assess test-retest reliability and stability. PARTICIPANTS AND PROCEDURES: A calibration sample of 877 individuals with traumatic SCI across five SCI Model Systems sites and one Department of Veterans Affairs medical center completed SCI-QOL items in interview format. RESULTS: We developed 14 unidimensional calibrated item banks and 3 calibrated scales across physical, emotional, and social health domains. When combined with the five Spinal Cord Injury – Functional Index physical function banks, the final SCI-QOL system consists of 22 IRT-calibrated item banks/scales. Item banks may be administered as CATs or short forms. Scales may be administered in a fixed-length format only. CONCLUSIONS: The SCI-QOL measurement system provides SCI researchers and clinicians with a comprehensive, relevant and psychometrically robust system for measurement of physical-medical, physical-functional, emotional, and social outcomes. All SCI-QOL instruments are freely available on Assessment Center(SM). |
format | Online Article Text |
id | pubmed-4445019 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | Maney Publishing |
record_format | MEDLINE/PubMed |
spelling | pubmed-44450192016-05-01 Methodology for the development and calibration of the SCI-QOL item banks Tulsky, David S. Kisala, Pamela A. Victorson, David Choi, Seung W. Gershon, Richard Heinemann, Allen W. Cella, David J Spinal Cord Med Research Articles OBJECTIVE: To develop a comprehensive, psychometrically sound, and conceptually grounded patient reported outcomes (PRO) measurement system for individuals with spinal cord injury (SCI). METHODS: Individual interviews (n = 44) and focus groups (n = 65 individuals with SCI and n = 42 SCI clinicians) were used to select key domains for inclusion and to develop PRO items. Verbatim items from other cutting-edge measurement systems (i.e. PROMIS, Neuro-QOL) were included to facilitate linkage and cross-population comparison. Items were field tested in a large sample of individuals with traumatic SCI (n = 877). Dimensionality was assessed with confirmatory factor analysis. Local item dependence and differential item functioning were assessed, and items were calibrated using the item response theory (IRT) graded response model. Finally, computer adaptive tests (CATs) and short forms were administered in a new sample (n = 245) to assess test-retest reliability and stability. PARTICIPANTS AND PROCEDURES: A calibration sample of 877 individuals with traumatic SCI across five SCI Model Systems sites and one Department of Veterans Affairs medical center completed SCI-QOL items in interview format. RESULTS: We developed 14 unidimensional calibrated item banks and 3 calibrated scales across physical, emotional, and social health domains. When combined with the five Spinal Cord Injury – Functional Index physical function banks, the final SCI-QOL system consists of 22 IRT-calibrated item banks/scales. Item banks may be administered as CATs or short forms. Scales may be administered in a fixed-length format only. CONCLUSIONS: The SCI-QOL measurement system provides SCI researchers and clinicians with a comprehensive, relevant and psychometrically robust system for measurement of physical-medical, physical-functional, emotional, and social outcomes. All SCI-QOL instruments are freely available on Assessment Center(SM). Maney Publishing 2015-05 /pmc/articles/PMC4445019/ /pubmed/26010963 http://dx.doi.org/10.1179/2045772315Y.0000000034 Text en © The Academy of Spinal Cord Injury Professionals, Inc. 2015 http://creativecommons.org/licenses/by/3.0/ MORE OpenChoice articles are open access and distributed under the terms of the Creative Commons Attribution License 3.0 |
spellingShingle | Research Articles Tulsky, David S. Kisala, Pamela A. Victorson, David Choi, Seung W. Gershon, Richard Heinemann, Allen W. Cella, David Methodology for the development and calibration of the SCI-QOL item banks |
title | Methodology for the development and calibration of the SCI-QOL item banks |
title_full | Methodology for the development and calibration of the SCI-QOL item banks |
title_fullStr | Methodology for the development and calibration of the SCI-QOL item banks |
title_full_unstemmed | Methodology for the development and calibration of the SCI-QOL item banks |
title_short | Methodology for the development and calibration of the SCI-QOL item banks |
title_sort | methodology for the development and calibration of the sci-qol item banks |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4445019/ https://www.ncbi.nlm.nih.gov/pubmed/26010963 http://dx.doi.org/10.1179/2045772315Y.0000000034 |
work_keys_str_mv | AT tulskydavids methodologyforthedevelopmentandcalibrationofthesciqolitembanks AT kisalapamelaa methodologyforthedevelopmentandcalibrationofthesciqolitembanks AT victorsondavid methodologyforthedevelopmentandcalibrationofthesciqolitembanks AT choiseungw methodologyforthedevelopmentandcalibrationofthesciqolitembanks AT gershonrichard methodologyforthedevelopmentandcalibrationofthesciqolitembanks AT heinemannallenw methodologyforthedevelopmentandcalibrationofthesciqolitembanks AT celladavid methodologyforthedevelopmentandcalibrationofthesciqolitembanks |