Familial diagnostic experiences in paediatric oncology

BACKGROUND: Diagnostic delays may not have significant prognostic implications in paediatric oncology, but psychological impacts remain understudied. METHODS: Interviews exploring diagnostic experiences were conducted with childhood cancer survivors (n=19), parents (n=78) and siblings (n=15). RESULT...

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Detalles Bibliográficos
Autores principales: Evans, N T, Wakefield, C E, McLoone, J K, Cohn, R J
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group 2015
Materias:
Short Communication
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4453595/
https://www.ncbi.nlm.nih.gov/pubmed/25268376
http://dx.doi.org/10.1038/bjc.2014.516
Descripción
Sumario:BACKGROUND: Diagnostic delays may not have significant prognostic implications in paediatric oncology, but psychological impacts remain understudied. METHODS: Interviews exploring diagnostic experiences were conducted with childhood cancer survivors (n=19), parents (n=78) and siblings (n=15). RESULTS: Median diagnostic time was 3 weeks. Participants described a mixture of rapid diagnoses (28.9%), plus delayed appraisal intervals (that is, parent- or patient-associated diagnostic delays; 40.0%) and diagnostic intervals (that is, healthcare-associated delays; 46.7%). Families experiencing delays described guilt and anger and deleterious impacts on the family–clinician relationship. Some believed delays impacted on treatment and prognosis. CONCLUSIONS: The effect of the diagnostic experience can be considerable.

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