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A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis

BACKGROUND: Depression and anxiety are prevalent in people with cystic fibrosis (CF), yet psychological services are rarely accessible in CF clinics. This cross-sectional single center study reports on a psychological needs assessment of people with CF. METHODS: We asked adults attending a CF clinic...

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Autores principales: Pakhale, Smita, Baron, Justine, Armstrong, Michael, Tasca, Georgio, Gaudet, Ena, Aaron, Shawn, Cameron, William, Balfour, Louise
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4478009/
https://www.ncbi.nlm.nih.gov/pubmed/26102351
http://dx.doi.org/10.1371/journal.pone.0127944
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author Pakhale, Smita
Baron, Justine
Armstrong, Michael
Tasca, Georgio
Gaudet, Ena
Aaron, Shawn
Cameron, William
Balfour, Louise
author_facet Pakhale, Smita
Baron, Justine
Armstrong, Michael
Tasca, Georgio
Gaudet, Ena
Aaron, Shawn
Cameron, William
Balfour, Louise
author_sort Pakhale, Smita
collection PubMed
description BACKGROUND: Depression and anxiety are prevalent in people with cystic fibrosis (CF), yet psychological services are rarely accessible in CF clinics. This cross-sectional single center study reports on a psychological needs assessment of people with CF. METHODS: We asked adults attending a CF clinic, without integrated psychological services, to complete a psychological needs assessment survey that included items on: a) past access to psychological services (via a CF referral service), b) concerns relevant to discuss with a psychologist, and c) their likelihood of accessing psychological services if available at the CF clinic, and standardized measures of depression (CES-D) and anxiety (GAD-7). RESULTS: We enrolled 49 participants and 45 (91.8%) completed the survey. Forty percent reported elevated symptoms of depression and 13% had elevated anxiety. A majority of individuals (72.2% and 83.3%, respectively) indicated they would be likely to use psychological services, if available at the clinic. Concerns considered most relevant to discuss with a psychologist were: 1) worries (51.1%), 2) mood (44.4%), 3) life stress (46.6%), 4) adjustment to CF (42.2%), 5) life transitions (42.2%) and 6) quality of life (42.2%). CONCLUSIONS: This study highlights the rationale for screening adults with CF for depression and anxiety, and to facilitate provision of psychological services and preventative mental health interventions as an integral component of multi-disciplinary CF care.
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spelling pubmed-44780092015-07-02 A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis Pakhale, Smita Baron, Justine Armstrong, Michael Tasca, Georgio Gaudet, Ena Aaron, Shawn Cameron, William Balfour, Louise PLoS One Research Article BACKGROUND: Depression and anxiety are prevalent in people with cystic fibrosis (CF), yet psychological services are rarely accessible in CF clinics. This cross-sectional single center study reports on a psychological needs assessment of people with CF. METHODS: We asked adults attending a CF clinic, without integrated psychological services, to complete a psychological needs assessment survey that included items on: a) past access to psychological services (via a CF referral service), b) concerns relevant to discuss with a psychologist, and c) their likelihood of accessing psychological services if available at the CF clinic, and standardized measures of depression (CES-D) and anxiety (GAD-7). RESULTS: We enrolled 49 participants and 45 (91.8%) completed the survey. Forty percent reported elevated symptoms of depression and 13% had elevated anxiety. A majority of individuals (72.2% and 83.3%, respectively) indicated they would be likely to use psychological services, if available at the clinic. Concerns considered most relevant to discuss with a psychologist were: 1) worries (51.1%), 2) mood (44.4%), 3) life stress (46.6%), 4) adjustment to CF (42.2%), 5) life transitions (42.2%) and 6) quality of life (42.2%). CONCLUSIONS: This study highlights the rationale for screening adults with CF for depression and anxiety, and to facilitate provision of psychological services and preventative mental health interventions as an integral component of multi-disciplinary CF care. Public Library of Science 2015-06-23 /pmc/articles/PMC4478009/ /pubmed/26102351 http://dx.doi.org/10.1371/journal.pone.0127944 Text en © 2015 Pakhale et al http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are properly credited.
spellingShingle Research Article
Pakhale, Smita
Baron, Justine
Armstrong, Michael
Tasca, Georgio
Gaudet, Ena
Aaron, Shawn
Cameron, William
Balfour, Louise
A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis
title A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis
title_full A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis
title_fullStr A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis
title_full_unstemmed A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis
title_short A Cross-Sectional Study of the Psychological Needs of Adults Living with Cystic Fibrosis
title_sort cross-sectional study of the psychological needs of adults living with cystic fibrosis
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4478009/
https://www.ncbi.nlm.nih.gov/pubmed/26102351
http://dx.doi.org/10.1371/journal.pone.0127944
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