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The everyday use of assistive technology by people with dementia and their family carers: a qualitative study

BACKGROUND: Assistive Technology (AT) has been suggested as a means by which people with dementia can be helped to live independently, while also leading to greater efficiencies in care. However little is known about how AT is being used by people with dementia and their carers in their daily routin...

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Autores principales: Gibson, Grant, Dickinson, Claire, Brittain, Katie, Robinson, Louise
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4514453/
https://www.ncbi.nlm.nih.gov/pubmed/26205957
http://dx.doi.org/10.1186/s12877-015-0091-3
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author Gibson, Grant
Dickinson, Claire
Brittain, Katie
Robinson, Louise
author_facet Gibson, Grant
Dickinson, Claire
Brittain, Katie
Robinson, Louise
author_sort Gibson, Grant
collection PubMed
description BACKGROUND: Assistive Technology (AT) has been suggested as a means by which people with dementia can be helped to live independently, while also leading to greater efficiencies in care. However little is known about how AT is being used by people with dementia and their carers in their daily routines. This paper reports on a qualitative study exploring the everyday use of AT by people with dementia and their families. METHODS: The research employed a qualitative methodology. Semi structured interviews took place with 39 participants, 13 people with dementia and 26 carers. Key themes were identified using thematic analysis and the constant comparative method. RESULTS: Three categories of AT use in everyday settings were identified; formal AT, accessed via social care services, ‘off the shelf AT’ purchased privately, and ‘do it yourself’ AT, everyday household products adapted by families to fulfil individual need in the absence of specific devices. Access to AT was driven by carers, with the majority of benefits being experienced by carers. Barriers to use included perceptions about AT cost; dilemmas about the best time to use AT; and a lack of information and support from formal health and social care services about how to access AT, where to source it and when and how it can be used. CONCLUSIONS: It has been argued that the ‘mixed economy’ landscape, with private AT provision supplementing state provision of AT, is a key feature for the mainstreaming of AT services. Our data suggests that such a mixed economy is indeed taking place, with more participants using ‘off the shelf’ and ‘DIY’ AT purchased privately rather than via health and social care services. However this system has largely arisen due to an inability of formal care services to meet client needs. Such findings therefore raise questions about just who AT in its current provision is working for and whether a mixed market approach is the most appropriate provider model. Everyday technologies play an important role in supporting families with dementia to continue caring; further research is needed however to determine the most effective and person-centred models for future AT provision.
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spelling pubmed-45144532015-07-25 The everyday use of assistive technology by people with dementia and their family carers: a qualitative study Gibson, Grant Dickinson, Claire Brittain, Katie Robinson, Louise BMC Geriatr Research Article BACKGROUND: Assistive Technology (AT) has been suggested as a means by which people with dementia can be helped to live independently, while also leading to greater efficiencies in care. However little is known about how AT is being used by people with dementia and their carers in their daily routines. This paper reports on a qualitative study exploring the everyday use of AT by people with dementia and their families. METHODS: The research employed a qualitative methodology. Semi structured interviews took place with 39 participants, 13 people with dementia and 26 carers. Key themes were identified using thematic analysis and the constant comparative method. RESULTS: Three categories of AT use in everyday settings were identified; formal AT, accessed via social care services, ‘off the shelf AT’ purchased privately, and ‘do it yourself’ AT, everyday household products adapted by families to fulfil individual need in the absence of specific devices. Access to AT was driven by carers, with the majority of benefits being experienced by carers. Barriers to use included perceptions about AT cost; dilemmas about the best time to use AT; and a lack of information and support from formal health and social care services about how to access AT, where to source it and when and how it can be used. CONCLUSIONS: It has been argued that the ‘mixed economy’ landscape, with private AT provision supplementing state provision of AT, is a key feature for the mainstreaming of AT services. Our data suggests that such a mixed economy is indeed taking place, with more participants using ‘off the shelf’ and ‘DIY’ AT purchased privately rather than via health and social care services. However this system has largely arisen due to an inability of formal care services to meet client needs. Such findings therefore raise questions about just who AT in its current provision is working for and whether a mixed market approach is the most appropriate provider model. Everyday technologies play an important role in supporting families with dementia to continue caring; further research is needed however to determine the most effective and person-centred models for future AT provision. BioMed Central 2015-07-24 /pmc/articles/PMC4514453/ /pubmed/26205957 http://dx.doi.org/10.1186/s12877-015-0091-3 Text en © Gibson et al. 2015 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Gibson, Grant
Dickinson, Claire
Brittain, Katie
Robinson, Louise
The everyday use of assistive technology by people with dementia and their family carers: a qualitative study
title The everyday use of assistive technology by people with dementia and their family carers: a qualitative study
title_full The everyday use of assistive technology by people with dementia and their family carers: a qualitative study
title_fullStr The everyday use of assistive technology by people with dementia and their family carers: a qualitative study
title_full_unstemmed The everyday use of assistive technology by people with dementia and their family carers: a qualitative study
title_short The everyday use of assistive technology by people with dementia and their family carers: a qualitative study
title_sort everyday use of assistive technology by people with dementia and their family carers: a qualitative study
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4514453/
https://www.ncbi.nlm.nih.gov/pubmed/26205957
http://dx.doi.org/10.1186/s12877-015-0091-3
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