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A quality-of-life measure for adults with primary ciliary dyskinesia: QOL–PCD
Primary ciliary dyskinesia (PCD) is characterised by chronic suppurative lung disease, rhino-sinusitis, hearing impairment and sub-fertility. We have developed the first multidimensional measure to assess health-related quality of life (HRQoL) in adults with PCD (QOL–PCD). Following a literature rev...
Autores principales: | Lucas, Jane S., Behan, Laura, Dunn Galvin, Audrey, Alpern, Adrianne, Morris, Anjana M., Carroll, Mary P., Knowles, Michael R., Leigh, Margaret W., Quittner, Alexandra L. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
European Respiratory Society
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4522020/ https://www.ncbi.nlm.nih.gov/pubmed/25976687 http://dx.doi.org/10.1183/09031936.00216214 |
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