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Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia

BACKGROUND: Many epidemiological studies that focus on pregnancy rely on maternal self-report of perinatal outcomes. The aim of this study was to evaluate the agreement between self-reported perinatal outcomes (gestational hypertension with or without proteinuria, gestational diabetes, premature bir...

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Autores principales: Gresham, Ellie, Forder, Peta, Chojenta, Catherine L., Byles, Julie E., Loxton, Deborah J., Hure, Alexis J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4524430/
https://www.ncbi.nlm.nih.gov/pubmed/26238999
http://dx.doi.org/10.1186/s12884-015-0597-x
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author Gresham, Ellie
Forder, Peta
Chojenta, Catherine L.
Byles, Julie E.
Loxton, Deborah J.
Hure, Alexis J.
author_facet Gresham, Ellie
Forder, Peta
Chojenta, Catherine L.
Byles, Julie E.
Loxton, Deborah J.
Hure, Alexis J.
author_sort Gresham, Ellie
collection PubMed
description BACKGROUND: Many epidemiological studies that focus on pregnancy rely on maternal self-report of perinatal outcomes. The aim of this study was to evaluate the agreement between self-reported perinatal outcomes (gestational hypertension with or without proteinuria, gestational diabetes, premature birth and low birth weight) in a longitudinal study and linked to administrative data (medical records). METHODS: Self-reported survey data from the Australian Longitudinal Study on Women’s Health was linked with the New South Wales Perinatal Data Collection. Agreement between the two sources was evaluated using percentage agreement and kappa statistics. Analyses were conducted at two levels by: i) the mother and ii) each individual child. RESULTS: Women reliably self-report their perinatal outcomes (≥87 % agreement). Gestational hypertension with or without proteinuria had the lowest level of agreement. Mothers’ reports of perinatal outcomes were more reliable when evaluated by child. Restricting the analysis to complete and consistent reporting further strengthened the reliability of the child-specific data, increasing the agreement from >92 to >95 % for all outcomes. CONCLUSIONS: The present study offers a high degree of confidence in the use of maternal self-reports of the perinatal outcomes gestational hypertension, gestational diabetes, preterm birth and low birth weight in epidemiological research, particularly when reported on a per child basis. Furthermore self-report offers a cost-effective and convenient method for gathering detailed maternal perinatal histories.
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spelling pubmed-45244302015-08-05 Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia Gresham, Ellie Forder, Peta Chojenta, Catherine L. Byles, Julie E. Loxton, Deborah J. Hure, Alexis J. BMC Pregnancy Childbirth Research Article BACKGROUND: Many epidemiological studies that focus on pregnancy rely on maternal self-report of perinatal outcomes. The aim of this study was to evaluate the agreement between self-reported perinatal outcomes (gestational hypertension with or without proteinuria, gestational diabetes, premature birth and low birth weight) in a longitudinal study and linked to administrative data (medical records). METHODS: Self-reported survey data from the Australian Longitudinal Study on Women’s Health was linked with the New South Wales Perinatal Data Collection. Agreement between the two sources was evaluated using percentage agreement and kappa statistics. Analyses were conducted at two levels by: i) the mother and ii) each individual child. RESULTS: Women reliably self-report their perinatal outcomes (≥87 % agreement). Gestational hypertension with or without proteinuria had the lowest level of agreement. Mothers’ reports of perinatal outcomes were more reliable when evaluated by child. Restricting the analysis to complete and consistent reporting further strengthened the reliability of the child-specific data, increasing the agreement from >92 to >95 % for all outcomes. CONCLUSIONS: The present study offers a high degree of confidence in the use of maternal self-reports of the perinatal outcomes gestational hypertension, gestational diabetes, preterm birth and low birth weight in epidemiological research, particularly when reported on a per child basis. Furthermore self-report offers a cost-effective and convenient method for gathering detailed maternal perinatal histories. BioMed Central 2015-08-04 /pmc/articles/PMC4524430/ /pubmed/26238999 http://dx.doi.org/10.1186/s12884-015-0597-x Text en © Gresham et al. 2015 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Gresham, Ellie
Forder, Peta
Chojenta, Catherine L.
Byles, Julie E.
Loxton, Deborah J.
Hure, Alexis J.
Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia
title Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia
title_full Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia
title_fullStr Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia
title_full_unstemmed Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia
title_short Agreement between self-reported perinatal outcomes and administrative data in New South Wales, Australia
title_sort agreement between self-reported perinatal outcomes and administrative data in new south wales, australia
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4524430/
https://www.ncbi.nlm.nih.gov/pubmed/26238999
http://dx.doi.org/10.1186/s12884-015-0597-x
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