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Approaching patient engagement in research: what do patients with cardiovascular disease think?
Movement toward patient-centered health care must be supported by an evidence base informed by greater patient engagement in research. Efforts to better understand patients’ interest in and perspectives on involvement in the research process are fundamental to supporting movement of research program...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Dove Medical Press
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4524577/ https://www.ncbi.nlm.nih.gov/pubmed/26251578 http://dx.doi.org/10.2147/PPA.S84980 |
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author | Finney Rutten, Lila J Morris, Megan A Schrader, Lisa M Manemann, Sheila M Pathak, Jyotishman Dimler, Robert Roger, Veronique L |
author_facet | Finney Rutten, Lila J Morris, Megan A Schrader, Lisa M Manemann, Sheila M Pathak, Jyotishman Dimler, Robert Roger, Veronique L |
author_sort | Finney Rutten, Lila J |
collection | PubMed |
description | Movement toward patient-centered health care must be supported by an evidence base informed by greater patient engagement in research. Efforts to better understand patients’ interest in and perspectives on involvement in the research process are fundamental to supporting movement of research programs toward greater patient engagement. We describe preliminary efforts to engage members of a community group of patients living with heart disease to better understand their interest and perspectives on involvement in research. A semi-structured focus group guide was developed to probe willingness to participate in the following three phases of research: preparation, execution, and translation. The focus group discussion, and our summary of key messages gleaned from said discussion, was organized around the phases of research that patients may be involved in, with the goal of delineating degrees of interest expressed for engagement in each phase. Consistent with what is known from the literature, a clear preference for engagement during the preparation and translation phase of the research process emerged. This preliminary conversation will guide our ongoing research efforts toward greater inclusion of patients throughout the research process. |
format | Online Article Text |
id | pubmed-4524577 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | Dove Medical Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-45245772015-08-06 Approaching patient engagement in research: what do patients with cardiovascular disease think? Finney Rutten, Lila J Morris, Megan A Schrader, Lisa M Manemann, Sheila M Pathak, Jyotishman Dimler, Robert Roger, Veronique L Patient Prefer Adherence Commentary Movement toward patient-centered health care must be supported by an evidence base informed by greater patient engagement in research. Efforts to better understand patients’ interest in and perspectives on involvement in the research process are fundamental to supporting movement of research programs toward greater patient engagement. We describe preliminary efforts to engage members of a community group of patients living with heart disease to better understand their interest and perspectives on involvement in research. A semi-structured focus group guide was developed to probe willingness to participate in the following three phases of research: preparation, execution, and translation. The focus group discussion, and our summary of key messages gleaned from said discussion, was organized around the phases of research that patients may be involved in, with the goal of delineating degrees of interest expressed for engagement in each phase. Consistent with what is known from the literature, a clear preference for engagement during the preparation and translation phase of the research process emerged. This preliminary conversation will guide our ongoing research efforts toward greater inclusion of patients throughout the research process. Dove Medical Press 2015-07-27 /pmc/articles/PMC4524577/ /pubmed/26251578 http://dx.doi.org/10.2147/PPA.S84980 Text en © 2015 Finney Rutten et al. This work is published by Dove Medical Press Limited, and licensed under Creative Commons Attribution – Non Commercial (unported, v3.0) License The full terms of the License are available at http://creativecommons.org/licenses/by-nc/3.0/. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. |
spellingShingle | Commentary Finney Rutten, Lila J Morris, Megan A Schrader, Lisa M Manemann, Sheila M Pathak, Jyotishman Dimler, Robert Roger, Veronique L Approaching patient engagement in research: what do patients with cardiovascular disease think? |
title | Approaching patient engagement in research: what do patients with cardiovascular disease think? |
title_full | Approaching patient engagement in research: what do patients with cardiovascular disease think? |
title_fullStr | Approaching patient engagement in research: what do patients with cardiovascular disease think? |
title_full_unstemmed | Approaching patient engagement in research: what do patients with cardiovascular disease think? |
title_short | Approaching patient engagement in research: what do patients with cardiovascular disease think? |
title_sort | approaching patient engagement in research: what do patients with cardiovascular disease think? |
topic | Commentary |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4524577/ https://www.ncbi.nlm.nih.gov/pubmed/26251578 http://dx.doi.org/10.2147/PPA.S84980 |
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