Developing a handheld record for patients with cystic fibrosis

Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Des...

Descripción completa

Detalles Bibliográficos
Autores principales: Narayan, Omendra, Davies, Siobhan, Tibbins, Carly, Rees, JH Martyn, Lenney, Warren, Gilchrist, Francis J
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove Medical Press 2015
Materias:
Short Report
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4540166/
https://www.ncbi.nlm.nih.gov/pubmed/26316833
http://dx.doi.org/10.2147/PROM.S86298
_version_ 1782386207369461760
author Narayan, Omendra
Davies, Siobhan
Tibbins, Carly
Rees, JH Martyn
Lenney, Warren
Gilchrist, Francis J
author_facet Narayan, Omendra
Davies, Siobhan
Tibbins, Carly
Rees, JH Martyn
Lenney, Warren
Gilchrist, Francis J
author_sort Narayan, Omendra
collection PubMed
description Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Despite the potential advantages, there are no standard PHHRs for patients with cystic fibrosis (CF). We report the consultation process that led to the development of a CF PHHR, describe the final document, and analyze the feedback from their use at our center. We have made the CF PHHR freely available online.
format Online
Article
Text
id pubmed-4540166
institution National Center for Biotechnology Information
language English
publishDate 2015
publisher Dove Medical Press
record_format MEDLINE/PubMed
spelling pubmed-45401662015-08-27 Developing a handheld record for patients with cystic fibrosis Narayan, Omendra Davies, Siobhan Tibbins, Carly Rees, JH Martyn Lenney, Warren Gilchrist, Francis J Patient Relat Outcome Meas Short Report Patient handheld records (PHHRs) promote self-management and empower the holder to take a more active role in the management of their disease. They have been used successfully in improving preventative care for children and have contributed to improved adherence in a number of chronic illnesses. Despite the potential advantages, there are no standard PHHRs for patients with cystic fibrosis (CF). We report the consultation process that led to the development of a CF PHHR, describe the final document, and analyze the feedback from their use at our center. We have made the CF PHHR freely available online. Dove Medical Press 2015-08-13 /pmc/articles/PMC4540166/ /pubmed/26316833 http://dx.doi.org/10.2147/PROM.S86298 Text en © 2015 Narayan et al. This work is published by Dove Medical Press Limited, and licensed under Creative Commons Attribution – Non Commercial (unported, v3.0) License The full terms of the License are available at http://creativecommons.org/licenses/by-nc/3.0/. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed.
spellingShingle Short Report
Narayan, Omendra
Davies, Siobhan
Tibbins, Carly
Rees, JH Martyn
Lenney, Warren
Gilchrist, Francis J
Developing a handheld record for patients with cystic fibrosis
title Developing a handheld record for patients with cystic fibrosis
title_full Developing a handheld record for patients with cystic fibrosis
title_fullStr Developing a handheld record for patients with cystic fibrosis
title_full_unstemmed Developing a handheld record for patients with cystic fibrosis
title_short Developing a handheld record for patients with cystic fibrosis
title_sort developing a handheld record for patients with cystic fibrosis
topic Short Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4540166/
https://www.ncbi.nlm.nih.gov/pubmed/26316833
http://dx.doi.org/10.2147/PROM.S86298
work_keys_str_mv AT narayanomendra developingahandheldrecordforpatientswithcysticfibrosis
AT daviessiobhan developingahandheldrecordforpatientswithcysticfibrosis
AT tibbinscarly developingahandheldrecordforpatientswithcysticfibrosis
AT reesjhmartyn developingahandheldrecordforpatientswithcysticfibrosis
AT lenneywarren developingahandheldrecordforpatientswithcysticfibrosis
AT gilchristfrancisj developingahandheldrecordforpatientswithcysticfibrosis

Ejemplares similares