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Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries
BACKGROUND: The strict and demanding dietary treatment and mild cognitive abnormalities seen in PKU treated from a young age can be expected to affect the health-related quality of life (HRQoL) of patients and their families. Our aim was to describe the HRQoL of patients with PKU from a large intern...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4542123/ https://www.ncbi.nlm.nih.gov/pubmed/26084935 http://dx.doi.org/10.1186/s13023-015-0294-x |