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The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents

BACKGROUND: The recent Canadian lawsuit on patent infringement, filed by the Children’s Hospital of Eastern Ontario (CHEO), has engendered a significant public debate on whether patenting genes should be legal in Canada. In part, this public debate has involved the use of social networking sites, su...

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Autores principales: Du, Li, Kamenova, Kalina, Caulfield, Timothy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4548905/
https://www.ncbi.nlm.nih.gov/pubmed/26302779
http://dx.doi.org/10.1186/s12910-015-0049-1
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author Du, Li
Kamenova, Kalina
Caulfield, Timothy
author_facet Du, Li
Kamenova, Kalina
Caulfield, Timothy
author_sort Du, Li
collection PubMed
description BACKGROUND: The recent Canadian lawsuit on patent infringement, filed by the Children’s Hospital of Eastern Ontario (CHEO), has engendered a significant public debate on whether patenting genes should be legal in Canada. In part, this public debate has involved the use of social networking sites, such as Twitter. This case provides an opportunity to examine how Twitter was used in the context of this gene patent controversy. METHODS: We collected 310 English-language tweets that contained the keyword “gene patents” by using TOPSY.com and Twitter’s built-in search engine. A content analysis of the messages was conducted to establish the users’ perspectives on both CHEO’s court challenge and the broader controversy over the patenting of human DNA. More specifically, we analyzed the users’ demographics, geographic locations, and attitudes toward the CHEO position on gene patents and the patentability of human genes in principle. RESULTS: Our analysis has shown that messages tweeted by news media and health care organizations were re-tweeted most frequently in Twitter discussions regarding both the CHEO patent infringement lawsuit and gene patents in general. 34.8 % of tweets were supportive of CHEO, with 52.8 % of the supportive tweets suggesting that gene patents contravene patients’ rights to health care access. 17.6 % of the supportive tweets cited ethical and social concerns against gene patents. Nearly 40 % of tweets clearly expressed that human genes should not be patentable, and there were no tweets that presented perspectives favourable toward the patenting of human genes. CONCLUSION: Access to healthcare and the use of genetic testing were the most important concerns raised by Twitter users in the context of the CHEO case. Our analysis of tweets reveals an expectation that the CHEO lawsuit will provide an opportunity to clear the confusion on gene patents by establishing a legal precedent on the patentability of human genes in Canada. In general, there were no tweets arguing in favour of gene patents. Given the emerging role of social media in framing the public dialogue on these issues, this sentiment could potentially have an impact on the nature and tone of the Canadian policy debate.
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spelling pubmed-45489052015-08-26 The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents Du, Li Kamenova, Kalina Caulfield, Timothy BMC Med Ethics Research Article BACKGROUND: The recent Canadian lawsuit on patent infringement, filed by the Children’s Hospital of Eastern Ontario (CHEO), has engendered a significant public debate on whether patenting genes should be legal in Canada. In part, this public debate has involved the use of social networking sites, such as Twitter. This case provides an opportunity to examine how Twitter was used in the context of this gene patent controversy. METHODS: We collected 310 English-language tweets that contained the keyword “gene patents” by using TOPSY.com and Twitter’s built-in search engine. A content analysis of the messages was conducted to establish the users’ perspectives on both CHEO’s court challenge and the broader controversy over the patenting of human DNA. More specifically, we analyzed the users’ demographics, geographic locations, and attitudes toward the CHEO position on gene patents and the patentability of human genes in principle. RESULTS: Our analysis has shown that messages tweeted by news media and health care organizations were re-tweeted most frequently in Twitter discussions regarding both the CHEO patent infringement lawsuit and gene patents in general. 34.8 % of tweets were supportive of CHEO, with 52.8 % of the supportive tweets suggesting that gene patents contravene patients’ rights to health care access. 17.6 % of the supportive tweets cited ethical and social concerns against gene patents. Nearly 40 % of tweets clearly expressed that human genes should not be patentable, and there were no tweets that presented perspectives favourable toward the patenting of human genes. CONCLUSION: Access to healthcare and the use of genetic testing were the most important concerns raised by Twitter users in the context of the CHEO case. Our analysis of tweets reveals an expectation that the CHEO lawsuit will provide an opportunity to clear the confusion on gene patents by establishing a legal precedent on the patentability of human genes in Canada. In general, there were no tweets arguing in favour of gene patents. Given the emerging role of social media in framing the public dialogue on these issues, this sentiment could potentially have an impact on the nature and tone of the Canadian policy debate. BioMed Central 2015-08-25 /pmc/articles/PMC4548905/ /pubmed/26302779 http://dx.doi.org/10.1186/s12910-015-0049-1 Text en © Du et al. 2015 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Du, Li
Kamenova, Kalina
Caulfield, Timothy
The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents
title The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents
title_full The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents
title_fullStr The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents
title_full_unstemmed The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents
title_short The gene patent controversy on Twitter: a case study of Twitter users’ responses to the CHEO lawsuit against Long QT gene patents
title_sort gene patent controversy on twitter: a case study of twitter users’ responses to the cheo lawsuit against long qt gene patents
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4548905/
https://www.ncbi.nlm.nih.gov/pubmed/26302779
http://dx.doi.org/10.1186/s12910-015-0049-1
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