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Governing the research-care divide in clinical biobanking: Dutch perspectives

Biobanking, the large-scale, systematic collection of data and tissue for open-ended research purposes, is on the rise, particularly in clinical research. The infrastructures for the systematic procurement, management and eventual use of human tissue and data are positioned between healthcare and re...

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Detalles Bibliográficos
Autores principales: Boeckhout, Martin, Douglas, Conor M.W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4551681/
https://www.ncbi.nlm.nih.gov/pubmed/26246123
http://dx.doi.org/10.1186/s40504-015-0025-z
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author Boeckhout, Martin
Douglas, Conor M.W.
author_facet Boeckhout, Martin
Douglas, Conor M.W.
author_sort Boeckhout, Martin
collection PubMed
description Biobanking, the large-scale, systematic collection of data and tissue for open-ended research purposes, is on the rise, particularly in clinical research. The infrastructures for the systematic procurement, management and eventual use of human tissue and data are positioned between healthcare and research. However, the positioning of biobanking infrastructures and transfer of tissue and data between research and care is not an innocuous go-between. Instead, it involves changes in both domains and raises issues about how distinctions between research and care are drawn and policed. Based on an analysis of the emergence and development of clinical biobanking in the Netherlands, this article explores how processes of bio-objectification associated with biobanking arise, redefining the ways in which distinctions between research and clinical care are governed.
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spelling pubmed-45516812015-09-03 Governing the research-care divide in clinical biobanking: Dutch perspectives Boeckhout, Martin Douglas, Conor M.W. Life Sci Soc Policy Research Biobanking, the large-scale, systematic collection of data and tissue for open-ended research purposes, is on the rise, particularly in clinical research. The infrastructures for the systematic procurement, management and eventual use of human tissue and data are positioned between healthcare and research. However, the positioning of biobanking infrastructures and transfer of tissue and data between research and care is not an innocuous go-between. Instead, it involves changes in both domains and raises issues about how distinctions between research and care are drawn and policed. Based on an analysis of the emergence and development of clinical biobanking in the Netherlands, this article explores how processes of bio-objectification associated with biobanking arise, redefining the ways in which distinctions between research and clinical care are governed. Springer Berlin Heidelberg 2015-08-06 /pmc/articles/PMC4551681/ /pubmed/26246123 http://dx.doi.org/10.1186/s40504-015-0025-z Text en © Boeckhout and Douglas. 2015 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/ (http://creativecommons.org/licenses/by/4.0) ), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research
Boeckhout, Martin
Douglas, Conor M.W.
Governing the research-care divide in clinical biobanking: Dutch perspectives
title Governing the research-care divide in clinical biobanking: Dutch perspectives
title_full Governing the research-care divide in clinical biobanking: Dutch perspectives
title_fullStr Governing the research-care divide in clinical biobanking: Dutch perspectives
title_full_unstemmed Governing the research-care divide in clinical biobanking: Dutch perspectives
title_short Governing the research-care divide in clinical biobanking: Dutch perspectives
title_sort governing the research-care divide in clinical biobanking: dutch perspectives
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4551681/
https://www.ncbi.nlm.nih.gov/pubmed/26246123
http://dx.doi.org/10.1186/s40504-015-0025-z
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