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Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services
BACKGROUND: Formal recognition and involvement of carers in mental health services has been the focus of recent policy and practice initiatives as well as being supported by carers themselves. However, carers still report feeling marginalised and distanced from services. A prominent theme is that th...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4553006/ https://www.ncbi.nlm.nih.gov/pubmed/26319602 http://dx.doi.org/10.1186/s12888-015-0590-y |
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author | Cree, Lindsey Brooks, Helen L. Berzins, Kathryn Fraser, Claire Lovell, Karina Bee, Penny |
author_facet | Cree, Lindsey Brooks, Helen L. Berzins, Kathryn Fraser, Claire Lovell, Karina Bee, Penny |
author_sort | Cree, Lindsey |
collection | PubMed |
description | BACKGROUND: Formal recognition and involvement of carers in mental health services has been the focus of recent policy and practice initiatives as well as being supported by carers themselves. However, carers still report feeling marginalised and distanced from services. A prominent theme is that that they are not listened to and their concerns are not taken seriously. Compared to service user views, the reasons underpinning carers’ dissatisfaction with care-planning procedures have been relatively neglected in the research literature, despite the substantial and significant contribution that they make to mental health services. The aim of the study was to explore carers’ experiences of the care planning process for people with severe mental illness. METHODS: Qualitative interviews and focus groups were undertaken with carers. Data were combined and analysed using framework analysis. RESULTS: Whilst identifying a shared desire for involvement and confirming a potential role for carers within services, our data highlighted that many carers perceive a lack of involvement in care planning and a lack of recognition and appreciation of their role from health professionals. Barriers to involvement included structural barriers, such as the timing and location of meetings, cultural barriers relating to power imbalances within the system and specific barriers relating to confidentiality. CONCLUSIONS: This qualitative study led by a researcher who was a carer herself has developed the understanding of the potential role of carers within the care planning process within mental health services, along with the facilitators and barriers to achieving optimal involvement. |
format | Online Article Text |
id | pubmed-4553006 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-45530062015-08-30 Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services Cree, Lindsey Brooks, Helen L. Berzins, Kathryn Fraser, Claire Lovell, Karina Bee, Penny BMC Psychiatry Research Article BACKGROUND: Formal recognition and involvement of carers in mental health services has been the focus of recent policy and practice initiatives as well as being supported by carers themselves. However, carers still report feeling marginalised and distanced from services. A prominent theme is that that they are not listened to and their concerns are not taken seriously. Compared to service user views, the reasons underpinning carers’ dissatisfaction with care-planning procedures have been relatively neglected in the research literature, despite the substantial and significant contribution that they make to mental health services. The aim of the study was to explore carers’ experiences of the care planning process for people with severe mental illness. METHODS: Qualitative interviews and focus groups were undertaken with carers. Data were combined and analysed using framework analysis. RESULTS: Whilst identifying a shared desire for involvement and confirming a potential role for carers within services, our data highlighted that many carers perceive a lack of involvement in care planning and a lack of recognition and appreciation of their role from health professionals. Barriers to involvement included structural barriers, such as the timing and location of meetings, cultural barriers relating to power imbalances within the system and specific barriers relating to confidentiality. CONCLUSIONS: This qualitative study led by a researcher who was a carer herself has developed the understanding of the potential role of carers within the care planning process within mental health services, along with the facilitators and barriers to achieving optimal involvement. BioMed Central 2015-08-29 /pmc/articles/PMC4553006/ /pubmed/26319602 http://dx.doi.org/10.1186/s12888-015-0590-y Text en © Cree et al. 2015 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. |
spellingShingle | Research Article Cree, Lindsey Brooks, Helen L. Berzins, Kathryn Fraser, Claire Lovell, Karina Bee, Penny Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services |
title | Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services |
title_full | Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services |
title_fullStr | Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services |
title_full_unstemmed | Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services |
title_short | Carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services |
title_sort | carers’ experiences of involvement in care planning: a qualitative exploration of the facilitators and barriers to engagement with mental health services |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4553006/ https://www.ncbi.nlm.nih.gov/pubmed/26319602 http://dx.doi.org/10.1186/s12888-015-0590-y |
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