Cargando…

Research Stakeholders’ Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations

BACKGROUND: There is increasing recognition of the importance of sharing research data within the international scientific community, but also of the ethical and social challenges this presents, particularly in the context of structural inequities and varied capacity in international research. Publi...

Descripción completa

Detalles Bibliográficos
Autores principales:	Jao, Irene, Kombe, Francis, Mwalukore, Salim, Bull, Susan, Parker, Michael, Kamuya, Dorcas, Molyneux, Sassy, Marsh, Vicki
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Public Library of Science 2015
Materias:	Research Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4557837/ https://www.ncbi.nlm.nih.gov/pubmed/26331716 http://dx.doi.org/10.1371/journal.pone.0135545

Ejemplares similares

Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement
por: Jao, Irene, et al.
Publicado: (2015)

Benefits in Cash or in Kind? A Community Consultation on Types of Benefits in Health Research on the Kenyan Coast
por: Njue, Maureen, et al.
Publicado: (2015)

What Are Fair Study Benefits in International Health Research? Consulting Community Members in Kenya
por: Njue, Maureen, et al.
Publicado: (2014)

Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya
por: Marsh, Vicki, et al.
Publicado: (2008)

Strengthening the Informed Consent Process in International Health Research through Community Engagement: The KEMRI-Wellcome Trust Research Programme Experience
por: Boga, Mwanamvua, et al.
Publicado: (2011)

ENGAGING COMMUNITIES TO STRENGTHEN RESEARCH ETHICS IN LOW-INCOME SETTINGS: SELECTION AND PERCEPTIONS OF MEMBERS OF A NETWORK OF REPRESENTATIVES IN COASTAL KENYA
por: Kamuya, Dorcas M, et al.
Publicado: (2013)

Enhancing fieldworkers’ performance management support in health research: an exploratory study on the views of field managers and fieldworkers from major research centres in Africa
por: Kombe, Francis Kazungu, et al.
Publicado: (2019)

Pandemic preparedness and responsiveness of research review committees: lessons from review of COVID-19 protocols at KEMRI Wellcome Trust Research Programme in Kenya
por: Hinga, Alex, et al.
Publicado: (2022)

Kenyan health stakeholder views on individual consent, general notification and governance processes for the re-use of hospital inpatient data to support learning on healthcare systems
por: Mbuthia, Daniel, et al.
Publicado: (2019)

Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya
por: Marsh, Vicki, et al.
Publicado: (2013)

Always leave the audience wanting more: An entertaining approach to stimulate engagement with health research among publics in coastal Kenya through ‘Magnet Theatre’
por: Sanga, Gladys, et al.
Publicado: (2021)

‘All her children are born that way’: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya
por: Marsh, Vicki M., et al.
Publicado: (2011)

Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: ‘Consulting communities’ to inform policy()
por: Marsh, Vicki, et al.
Publicado: (2013)

“The One Who Chases You Away Does Not Tell You Go”: Silent Refusals and Complex Power Relations in Research Consent Processes in Coastal Kenya
por: Kamuya, Dorcas M., et al.
Publicado: (2015)

Who should decide about children’s and adolescents’ participation in health research? The views of children and adults in rural Kenya
por: Marsh, Vicki, et al.
Publicado: (2019)

Deliberately infecting healthy volunteers with malaria parasites: Perceptions and experiences of participants and other stakeholders in a Kenyan‐based malaria infection study
por: Jao, Irene, et al.
Publicado: (2020)

Evolution of a programme to engage school students with health research and science in Kenya
por: Davies, Alun, et al.
Publicado: (2019)

“When they see us, it’s like they have seen the benefits!”: experiences of study benefits negotiations in community-based studies on the Kenyan Coast
por: Kamuya, Dorcas M, et al.
Publicado: (2014)

Benefits and payments for research participants: Experiences and views from a research centre on the Kenyan coast
por: Molyneux, Sassy, et al.
Publicado: (2012)

Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya
por: Marsh, Vicki M, et al.
Publicado: (2010)

Complex realities: community engagement for a paediatric randomized controlled malaria vaccine trial in Kilifi, Kenya
por: Angwenyi, Vibian, et al.
Publicado: (2014)

Understanding the benefits and burdens associated with a malaria human infection study in Kenya: experiences of study volunteers and other stakeholders
por: Chi, Primus Che, et al.
Publicado: (2021)

FEEDBACK OF RESEARCH FINDINGS FOR VACCINE TRIALS: EXPERIENCES FROM TWO MALARIA VACCINE TRIALS INVOLVING HEALTHY CHILDREN ON THE KENYAN COAST
por: Gikonyo, Caroline, et al.
Publicado: (2013)

Ethical considerations in Controlled Human Malaria Infection studies in low resource settings: Experiences and perceptions of study participants in a malaria Challenge study in Kenya
por: Njue, Maureen, et al.
Publicado: (2018)

WORKING WITH COMMUNITY HEALTH WORKERS AS ‘VOLUNTEERS’ IN A VACCINE TRIAL: PRACTICAL AND ETHICAL EXPERIENCES AND IMPLICATIONS
por: Angwenyi, Vibian, et al.
Publicado: (2013)

Justice: a key consideration in health policy and systems research ethics
por: Pratt, Bridget, et al.
Publicado: (2020)

Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya
por: Tindana, Paulina, et al.
Publicado: (2014)

Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective
por: Ewuoso, Cornelius, et al.
Publicado: (2022)

Stakeholders understanding of the concept of benefit sharing in health research in Kenya: a qualitative study
por: Lairumbi, Geoffrey M, et al.
Publicado: (2011)

Forms of benefit sharing in global health research undertaken in resource poor settings: a qualitative study of stakeholders' views in Kenya
por: Lairumbi, Geoffrey M, et al.
Publicado: (2012)

Ethical considerations around volunteer payments in a malaria human infection study in Kenya: an embedded empirical ethics study
por: Chi, Primus Che, et al.
Publicado: (2022)

Gendered negotiations for research participation in community-based studies: implications for health research policy and practice
por: Kamuya, Dorcas M, et al.
Publicado: (2017)

The hidden emotional labour behind ensuring the social value of research: Experiences of frontline health policy and systems researchers based in Kenya during COVID-19
por: Nzinga, Jacinta, et al.
Publicado: (2023)

Model for developing context-sensitive responses to vulnerability in research: managing ethical dilemmas faced by frontline research staff in Kenya
por: Molyneux, Sassy, et al.
Publicado: (2021)

EVOLVING FRIENDSHIPS AND SHIFTING ETHICAL DILEMMAS: FIELDWORKERS' EXPERIENCES IN A SHORT TERM COMMUNITY BASED STUDY IN KENYA
por: Kamuya, Dorcas M, et al.
Publicado: (2013)

Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders
por: Denny, Spencer G., et al.
Publicado: (2015)

Undertaking Community Engagement for a Controlled Human Malaria Infection Study in Kenya: Approaches and Lessons Learnt
por: Mumba, Noni, et al.
Publicado: (2022)

‘It is an entrustment’: Broad consent for genomic research and biobanks in sub‐Saharan Africa
por: Tindana, Paulina, et al.
Publicado: (2017)

Working with Concepts: The Role of Community in International Collaborative Biomedical Research
por: Marsh, V. M., et al.
Publicado: (2011)

“Facing Our Fears”: Using facilitated film viewings to engage communities in HIV research involving MSM in Kenya
por: Kombo, Bernadette, et al.
Publicado: (2017)

Cannot write session to /tmp/vufind_sessions/sess_9oecnhfrc61a0s7003i1ggg2ib