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Meeting the Emerging Public Health Needs of Persons With Blood Disorders

In its decades-long history, the Division of Blood Disorders (DBD) at CDC has evolved from a patient-focused, services-supporting entity at inception, to one of the world leaders in the practice of public health to improve the lives of people at risk for or affected by nonmalignant blood disorders....

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Autores principales: Parker, Christopher S., Tsai, James, Siddiqi, Azfar-e-Alam, Atrash, Hani K., Richardson, Lisa C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: 2014
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4568742/
https://www.ncbi.nlm.nih.gov/pubmed/25245797
http://dx.doi.org/10.1016/j.amepre.2014.07.008
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author Parker, Christopher S.
Tsai, James
Siddiqi, Azfar-e-Alam
Atrash, Hani K.
Richardson, Lisa C.
author_facet Parker, Christopher S.
Tsai, James
Siddiqi, Azfar-e-Alam
Atrash, Hani K.
Richardson, Lisa C.
author_sort Parker, Christopher S.
collection PubMed
description In its decades-long history, the Division of Blood Disorders (DBD) at CDC has evolved from a patient-focused, services-supporting entity at inception, to one of the world leaders in the practice of public health to improve the lives of people at risk for or affected by nonmalignant blood disorders. The DBD’s earliest public health activities consisted of working with care providers in a network of hemophilia treatment centers to provide AIDS risk reduction services to people with hemophilia. Because this infectious disease threat has been reduced over time as a result of the development of safer treatment products, the DBD—under the auspices of congressional appropriations guidance—has expanded its core activities to encompass blood disorders other than hemophilia, including hemoglobinopathies such as thalassemia and sickle cell disease, and Diamond Blackfan anemia. Simultaneously, in transitioning to a greater public health role, the DBD has expanded its network of partners to new consumer and professional organizations, as well as state and other federal health agencies. The DBD has also developed and maintains many surveillance and registry activities beyond the Universal Data Collection system aimed at providing a better understanding of the health status, health needs, and health-related quality of life of people with nonmalignant blood disorders. The DBD has integrated applicable components of the Essential Services of Public Health successfully to promote and advance the agenda of blood disorders in public health.
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spelling pubmed-45687422015-09-14 Meeting the Emerging Public Health Needs of Persons With Blood Disorders Parker, Christopher S. Tsai, James Siddiqi, Azfar-e-Alam Atrash, Hani K. Richardson, Lisa C. Am J Prev Med Article In its decades-long history, the Division of Blood Disorders (DBD) at CDC has evolved from a patient-focused, services-supporting entity at inception, to one of the world leaders in the practice of public health to improve the lives of people at risk for or affected by nonmalignant blood disorders. The DBD’s earliest public health activities consisted of working with care providers in a network of hemophilia treatment centers to provide AIDS risk reduction services to people with hemophilia. Because this infectious disease threat has been reduced over time as a result of the development of safer treatment products, the DBD—under the auspices of congressional appropriations guidance—has expanded its core activities to encompass blood disorders other than hemophilia, including hemoglobinopathies such as thalassemia and sickle cell disease, and Diamond Blackfan anemia. Simultaneously, in transitioning to a greater public health role, the DBD has expanded its network of partners to new consumer and professional organizations, as well as state and other federal health agencies. The DBD has also developed and maintains many surveillance and registry activities beyond the Universal Data Collection system aimed at providing a better understanding of the health status, health needs, and health-related quality of life of people with nonmalignant blood disorders. The DBD has integrated applicable components of the Essential Services of Public Health successfully to promote and advance the agenda of blood disorders in public health. 2014-09-19 2014-11 /pmc/articles/PMC4568742/ /pubmed/25245797 http://dx.doi.org/10.1016/j.amepre.2014.07.008 Text en This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/3.0/).
spellingShingle Article
Parker, Christopher S.
Tsai, James
Siddiqi, Azfar-e-Alam
Atrash, Hani K.
Richardson, Lisa C.
Meeting the Emerging Public Health Needs of Persons With Blood Disorders
title Meeting the Emerging Public Health Needs of Persons With Blood Disorders
title_full Meeting the Emerging Public Health Needs of Persons With Blood Disorders
title_fullStr Meeting the Emerging Public Health Needs of Persons With Blood Disorders
title_full_unstemmed Meeting the Emerging Public Health Needs of Persons With Blood Disorders
title_short Meeting the Emerging Public Health Needs of Persons With Blood Disorders
title_sort meeting the emerging public health needs of persons with blood disorders
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4568742/
https://www.ncbi.nlm.nih.gov/pubmed/25245797
http://dx.doi.org/10.1016/j.amepre.2014.07.008
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