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Genomic cloud computing: legal and ethical points to consider
The biggest challenge in twenty-first century data-intensive genomic science, is developing vast computer infrastructure and advanced software tools to perform comprehensive analyses of genomic data sets for biomedical research and clinical practice. Researchers are increasingly turning to cloud com...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4592072/ https://www.ncbi.nlm.nih.gov/pubmed/25248396 http://dx.doi.org/10.1038/ejhg.2014.196 |
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author | Dove, Edward S Joly, Yann Tassé, Anne-Marie Knoppers, Bartha M |
author_facet | Dove, Edward S Joly, Yann Tassé, Anne-Marie Knoppers, Bartha M |
author_sort | Dove, Edward S |
collection | PubMed |
description | The biggest challenge in twenty-first century data-intensive genomic science, is developing vast computer infrastructure and advanced software tools to perform comprehensive analyses of genomic data sets for biomedical research and clinical practice. Researchers are increasingly turning to cloud computing both as a solution to integrate data from genomics, systems biology and biomedical data mining and as an approach to analyze data to solve biomedical problems. Although cloud computing provides several benefits such as lower costs and greater efficiency, it also raises legal and ethical issues. In this article, we discuss three key ‘points to consider' (data control; data security, confidentiality and transfer; and accountability) based on a preliminary review of several publicly available cloud service providers' Terms of Service. These ‘points to consider' should be borne in mind by genomic research organizations when negotiating legal arrangements to store genomic data on a large commercial cloud service provider's servers. Diligent genomic cloud computing means leveraging security standards and evaluation processes as a means to protect data and entails many of the same good practices that researchers should always consider in securing their local infrastructure. |
format | Online Article Text |
id | pubmed-4592072 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | Nature Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-45920722015-10-13 Genomic cloud computing: legal and ethical points to consider Dove, Edward S Joly, Yann Tassé, Anne-Marie Knoppers, Bartha M Eur J Hum Genet Policy The biggest challenge in twenty-first century data-intensive genomic science, is developing vast computer infrastructure and advanced software tools to perform comprehensive analyses of genomic data sets for biomedical research and clinical practice. Researchers are increasingly turning to cloud computing both as a solution to integrate data from genomics, systems biology and biomedical data mining and as an approach to analyze data to solve biomedical problems. Although cloud computing provides several benefits such as lower costs and greater efficiency, it also raises legal and ethical issues. In this article, we discuss three key ‘points to consider' (data control; data security, confidentiality and transfer; and accountability) based on a preliminary review of several publicly available cloud service providers' Terms of Service. These ‘points to consider' should be borne in mind by genomic research organizations when negotiating legal arrangements to store genomic data on a large commercial cloud service provider's servers. Diligent genomic cloud computing means leveraging security standards and evaluation processes as a means to protect data and entails many of the same good practices that researchers should always consider in securing their local infrastructure. Nature Publishing Group 2015-10 2014-09-24 /pmc/articles/PMC4592072/ /pubmed/25248396 http://dx.doi.org/10.1038/ejhg.2014.196 Text en Copyright © 2015 Macmillan Publishers Limited http://creativecommons.org/licenses/by-nc-nd/3.0/ This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License. The images or other third party material in this article are included in the article's Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-nd/3.0/. |
spellingShingle | Policy Dove, Edward S Joly, Yann Tassé, Anne-Marie Knoppers, Bartha M Genomic cloud computing: legal and ethical points to consider |
title | Genomic cloud computing: legal and ethical points to consider |
title_full | Genomic cloud computing: legal and ethical points to consider |
title_fullStr | Genomic cloud computing: legal and ethical points to consider |
title_full_unstemmed | Genomic cloud computing: legal and ethical points to consider |
title_short | Genomic cloud computing: legal and ethical points to consider |
title_sort | genomic cloud computing: legal and ethical points to consider |
topic | Policy |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4592072/ https://www.ncbi.nlm.nih.gov/pubmed/25248396 http://dx.doi.org/10.1038/ejhg.2014.196 |
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