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Preferences for results delivery from Exome Sequencing/Genome Sequencing: Genome results preferences
PURPOSE: To explore the implications of sequencing information and stated preferences for return of results among research participants. METHODS: Six focus groups were held with 39 ClinSeq(®) participants. Groups included participants who had received results, those who had not, those affected with...
Autores principales: | Wright, Martha Frances, Lewis, Katie Leigh, Fisher, Tyler Charles, Hooker, Gillian Wells, Emanuel, Toby Elliot, Biesecker, Leslie Glen, Biesecker, Barbara Bowles |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
2013
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4597884/ https://www.ncbi.nlm.nih.gov/pubmed/24310310 http://dx.doi.org/10.1038/gim.2013.170 |
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