Promoting an ethic of engagement in pediatric palliative care research

BACKGROUND: This paper defends the ethical and empirical significance of direct engagement with terminally ill children and adolescents in PPC research on health-related quality of life. Clinical trials and other forms of health research have resulted in tremendous progress for improving clinical ou...

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Detalles Bibliográficos
Autores principales: Rahimzadeh, Vasiliki, Bartlett, Gillian, Longo, Cristina, Crimi, Laura, Macdonald, Mary Ellen, Jabado, Nada, Ells, Carolyn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Debate
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4608148/
https://www.ncbi.nlm.nih.gov/pubmed/26474573
http://dx.doi.org/10.1186/s12904-015-0048-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4608148/
https://www.ncbi.nlm.nih.gov/pubmed/26474573
http://dx.doi.org/10.1186/s12904-015-0048-5

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