Cargando…

Stakeholder perspectives on implementing a universal lynch syndrome screening program: A qualitative study of early barriers and facilitators

BACKGROUND: Evidence-based guidelines recommend that all newly diagnosed colon cancers be screened for Lynch syndrome (LS). Best practices for implementing universal tumor screening have not been extensively studied. PURPOSE: We interviewed a range of stakeholders in an integrated health care system...

Descripción completa

Detalles Bibliográficos
Autores principales:	Schneider, Jennifer L, Davis, James, Kauffman, Tia L, Reiss, Jacob A, McGinley, Cheryl, Arnold, Kathleen, Zepp, Jamilyn, Gilmore, Marian, Muessig, Kristin R., Syngal, Sapna, Acheson, Louise, Wiesner, Georgia L, Peterson, Susan K, Goddard, Katrina A.B.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	2015
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4608844/ https://www.ncbi.nlm.nih.gov/pubmed/25880440 http://dx.doi.org/10.1038/gim.2015.43

Ejemplares similares

Universal tumor screening for Lynch syndrome: Assessment of the perspectives of patients with colorectal cancer regarding benefits and barriers
por: Hunter, Jessica Ezzell, et al.
Publicado: (2015)

Recommended care and care adherence following a diagnosis of Lynch syndrome: a mixed-methods study
por: Mittendorf, Kathleen F., et al.
Publicado: (2019)

Patient and provider perspectives on adherence to and care coordination of lynch syndrome surveillance recommendations: findings from qualitative interviews
por: Schneider, Jennifer L., et al.
Publicado: (2018)

Identifying patients with Lynch syndrome using a universal tumor screening program in an integrated healthcare system
por: Crain, Philip R., et al.
Publicado: (2022)

Adaptation and early implementation of the PREdiction model for gene mutations (PREMM(5)™) for lynch syndrome risk assessment in a diverse population
por: Mittendorf, Kathleen F., et al.
Publicado: (2021)

Retrospective assessment of barriers and access to genetic services for hereditary cancer syndromes in an integrated health care delivery system
por: Muessig, Kristin R., et al.
Publicado: (2022)

Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews
por: Mittendorf, Kathleen F., et al.
Publicado: (2022)

Sebaceous neoplasms in Lynch syndrome
por: Dandapani, Monica, et al.
Publicado: (2011)

Risk management actions following genetic testing in the Cancer Health Assessments Reaching Many (CHARM) Study: A prospective cohort study
por: Guo, Boya, et al.
Publicado: (2023)

Systematic review of the predictive effect of MSI status in colorectal cancer patients undergoing 5FU-based chemotherapy
por: Webber, Elizabeth M, et al.
Publicado: (2015)

Genome sequencing and carrier testing: decisions on categorization and whether to disclose results of carrier testing
por: Himes, Patricia, et al.
Publicado: (2017)

Factors associated with genetic testing distress in patients tested for Lynch Syndrome or Hereditary Breast and Ovarian Cancer Syndrome
por: Rosenblatt, Margery, et al.
Publicado: (2011)

MyLynch: A Patient-Facing Clinical Decision Support Tool for Genetically-Guided Personalized Medicine in Lynch Syndrome
por: Knapp, Stephen T., et al.
Publicado: (2023)

“Is It Worth Knowing?” Focus Group Participants’ Perceived Utility of Genomic Preconception Carrier Screening
por: Schneider, Jennifer L., et al.
Publicado: (2015)

Integrating stakeholder feedback in translational genomics research: An ethnographic analysis of a study protocol’s evolution
por: Kraft, Stephanie A., et al.
Publicado: (2020)

Time Costs for Genetic Counseling in Preconception Carrier Screening with Genome Sequencing
por: Lynch, Frances L., et al.
Publicado: (2018)

Design of a randomized controlled trial for genomic carrier screening in healthy patients seeking preconception genetic testing
por: Kauffman, Tia L., et al.
Publicado: (2016)

The NextGen Study: patient motivation for participation in genome sequencing for carrier status
por: Kauffman, Tia L., et al.
Publicado: (2017)

Nonsurgical treatment of cystic adventitial disease of the popliteal artery caused by functional popliteal artery entrapment syndrome
por: McGinley, Joseph C.
Publicado: (2015)

Reliability of KRAS mutation testing in metastatic colorectal cancer patients across five laboratories
por: Feigelson, Heather Spencer, et al.
Publicado: (2012)

Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol
por: Kauffman, Tia L., et al.
Publicado: (2021)

Development and initial testing of a multi-stakeholder intervention for Lynch syndrome cascade screening: an intervention mapping approach
por: Passero, Lauren, et al.
Publicado: (2022)

Charles Lynch and His Vestigial Legacy—Workplace Lynching
por: Ramasubban, Suresh
Publicado: (2019)

Systemic circulating microRNA landscape in Lynch syndrome
por: Sievänen, Tero, et al.
Publicado: (2022)

The Statesboro Lynching
Publicado: (1904)

Health-related quality of life of ambulant adults with cerebral palsy and its association with falls and mobility decline: a preliminary cross sectional study
por: Morgan, Prue E, et al.
Publicado: (2014)

Medical emergency teams: implementation and outcome measurement
por: McGinley, Ann, et al.
Publicado: (2007)

Prospects of siponimod in secondary progressive multiple sclerosis
por: McGinley, Marisa, et al.
Publicado: (2018)

Walking and weakness in children: a narrative review of gait and functional ambulation in paediatric neuromuscular disease
por: Kennedy, Rachel A., et al.
Publicado: (2020)

Quantitative Assessment of Mammary Gland Density in Rodents Using Digital Image Analysis
por: McGinley, John N, et al.
Publicado: (2011)

Neutron and capture gamma along the mazes of linear accelerator vaults
por: Wu, Raymond K., et al.
Publicado: (2003)

Vagal Flexibility Mediates the Association Between Resting Vagal Activity and Cognitive Performance Stability Across Varying Socioemotional Demands
por: Spangler, Derek P., et al.
Publicado: (2020)

PLACE MATTERS: HOW LOCATION AT DEATH INFLUENCES CAREGIVER WELL-BEING IN BEREAVEMENT
por: Waldrop, Deborah P, et al.
Publicado: (2019)

Assessing the implications of positive genomic screening results
por: Waltz, Margaret, et al.
Publicado: (2020)

Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results
por: Duenas, Devan M., et al.
Publicado: (2023)

A Novel Approach to Identifying Barriers and Facilitators in Raising a Child With Type 1 Diabetes: Qualitative Analysis of Caregiver Blogs
por: Oser, Tamara K, et al.
Publicado: (2017)

Updates in gynecologic care for individuals with lynch syndrome
por: Underkofler, Kaylee A., et al.
Publicado: (2023)

Patient experiences living with pancreatic cancer risk
por: Underhill, Meghan, et al.
Publicado: (2015)

Lynch syndrome (HNPCC)
por: Kładny, Józef, et al.
Publicado: (2008)

On the road with Henry Lynch
por: Narod, Steven A.
Publicado: (2020)

Cannot write session to /tmp/vufind_sessions/sess_pfhhaa5tociogkt4go0u2ebfn5