Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative study

BACKGROUND: The clinical features of SMA, which range along a spectrum of severity, are relatively well described. In contrast, the literature on how individuals with SMA and their families experience this condition is limited. To address this gap, we undertook a qualitative study with individuals a...

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Detalles Bibliográficos
Autores principales: Qian, Ying, McGraw, Sarah, Henne, Jeff, Jarecki, Jill, Hobby, Kenneth, Yeh, Wei-Shi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4619513/
https://www.ncbi.nlm.nih.gov/pubmed/26499462
http://dx.doi.org/10.1186/s12883-015-0473-3

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4619513/
https://www.ncbi.nlm.nih.gov/pubmed/26499462
http://dx.doi.org/10.1186/s12883-015-0473-3

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