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Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative study
BACKGROUND: The clinical features of SMA, which range along a spectrum of severity, are relatively well described. In contrast, the literature on how individuals with SMA and their families experience this condition is limited. To address this gap, we undertook a qualitative study with individuals a...
| Autores principales: | , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2015
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4619513/ https://www.ncbi.nlm.nih.gov/pubmed/26499462 http://dx.doi.org/10.1186/s12883-015-0473-3 |