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Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity

The ethical aspects of biobanks and forensic DNA databases are often treated as separate issues. As a reflection of this, public participation, or the involvement of citizens in genetic databases, has been approached differently in the fields of forensics and medicine. This paper aims to cross the b...

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Autores principales: Machado, Helena, Silva, Susana
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4621370/
https://www.ncbi.nlm.nih.gov/pubmed/26139851
http://dx.doi.org/10.1136/medethics-2014-102126
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author Machado, Helena
Silva, Susana
author_facet Machado, Helena
Silva, Susana
author_sort Machado, Helena
collection PubMed
description The ethical aspects of biobanks and forensic DNA databases are often treated as separate issues. As a reflection of this, public participation, or the involvement of citizens in genetic databases, has been approached differently in the fields of forensics and medicine. This paper aims to cross the boundaries between medicine and forensics by exploring the flows between the ethical issues presented in the two domains and the subsequent conceptualisation of public trust and legitimisation. We propose to introduce the concept of ‘solidarity’, traditionally applied only to medical and research biobanks, into a consideration of public engagement in medicine and forensics. Inclusion of a solidarity-based framework, in both medical biobanks and forensic DNA databases, raises new questions that should be included in the ethical debate, in relation to both health services/medical research and activities associated with the criminal justice system.
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spelling pubmed-46213702015-11-12 Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity Machado, Helena Silva, Susana J Med Ethics Law, Ethics and Medicine The ethical aspects of biobanks and forensic DNA databases are often treated as separate issues. As a reflection of this, public participation, or the involvement of citizens in genetic databases, has been approached differently in the fields of forensics and medicine. This paper aims to cross the boundaries between medicine and forensics by exploring the flows between the ethical issues presented in the two domains and the subsequent conceptualisation of public trust and legitimisation. We propose to introduce the concept of ‘solidarity’, traditionally applied only to medical and research biobanks, into a consideration of public engagement in medicine and forensics. Inclusion of a solidarity-based framework, in both medical biobanks and forensic DNA databases, raises new questions that should be included in the ethical debate, in relation to both health services/medical research and activities associated with the criminal justice system. BMJ Publishing Group 2015-10 2015-07-02 /pmc/articles/PMC4621370/ /pubmed/26139851 http://dx.doi.org/10.1136/medethics-2014-102126 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/
spellingShingle Law, Ethics and Medicine
Machado, Helena
Silva, Susana
Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity
title Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity
title_full Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity
title_fullStr Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity
title_full_unstemmed Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity
title_short Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity
title_sort public participation in genetic databases: crossing the boundaries between biobanks and forensic dna databases through the principle of solidarity
topic Law, Ethics and Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4621370/
https://www.ncbi.nlm.nih.gov/pubmed/26139851
http://dx.doi.org/10.1136/medethics-2014-102126
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