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Focusing on rare diseases in China: are we there yet?

The Chinese researchers have made significant progress in studying rare diseases in the recent years. From 2000 to 2014, 269 out of 1892 clinically relevant original research papers published on high impact journals by Chinese institutions, and 2678 out of 6040 clinical trials conducted by Chinese i...

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Detalles Bibliográficos
Autores principales: Yang, Li, Su, Chang, Lee, Ashley M., Bai, Harrison X.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4630904/
https://www.ncbi.nlm.nih.gov/pubmed/26525984
http://dx.doi.org/10.1186/s13023-015-0361-3
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author Yang, Li
Su, Chang
Lee, Ashley M.
Bai, Harrison X.
author_facet Yang, Li
Su, Chang
Lee, Ashley M.
Bai, Harrison X.
author_sort Yang, Li
collection PubMed
description The Chinese researchers have made significant progress in studying rare diseases in the recent years. From 2000 to 2014, 269 out of 1892 clinically relevant original research papers published on high impact journals by Chinese institutions, and 2678 out of 6040 clinical trials conducted by Chinese institutions and registered at ClinicalTrial.gov are focused on rare diseases. The number of research papers and of clinical trials has shown a steady trend of increase. Creating public databases for rare disease will escalate progress in rare disease and enable multicenter studies.
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spelling pubmed-46309042015-11-04 Focusing on rare diseases in China: are we there yet? Yang, Li Su, Chang Lee, Ashley M. Bai, Harrison X. Orphanet J Rare Dis Letter to the Editor The Chinese researchers have made significant progress in studying rare diseases in the recent years. From 2000 to 2014, 269 out of 1892 clinically relevant original research papers published on high impact journals by Chinese institutions, and 2678 out of 6040 clinical trials conducted by Chinese institutions and registered at ClinicalTrial.gov are focused on rare diseases. The number of research papers and of clinical trials has shown a steady trend of increase. Creating public databases for rare disease will escalate progress in rare disease and enable multicenter studies. BioMed Central 2015-11-02 /pmc/articles/PMC4630904/ /pubmed/26525984 http://dx.doi.org/10.1186/s13023-015-0361-3 Text en © Yang et al. 2015 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Letter to the Editor
Yang, Li
Su, Chang
Lee, Ashley M.
Bai, Harrison X.
Focusing on rare diseases in China: are we there yet?
title Focusing on rare diseases in China: are we there yet?
title_full Focusing on rare diseases in China: are we there yet?
title_fullStr Focusing on rare diseases in China: are we there yet?
title_full_unstemmed Focusing on rare diseases in China: are we there yet?
title_short Focusing on rare diseases in China: are we there yet?
title_sort focusing on rare diseases in china: are we there yet?
topic Letter to the Editor
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4630904/
https://www.ncbi.nlm.nih.gov/pubmed/26525984
http://dx.doi.org/10.1186/s13023-015-0361-3
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