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Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals

BACKGROUND: People with dementia can benefit from a palliative care approach. Recommendations, such as those of the EAPC have been proposed to strengthen the provision of palliative care for this group of patients. Yet, it remains challenging for professionals to identify when a person with dementia...

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Autores principales: van Riet Paap, Jasper, Mariani, Elena, Chattat, Rabih, Koopmans, Raymond, Kerhervé, Hélène, Leppert, Wojciech, Forycka, Maria, Radbruch, Lukas, Jaspers, Birgit, Vissers, Kris, Vernooij-Dassen, Myrra, Engels, Yvonne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4632478/
https://www.ncbi.nlm.nih.gov/pubmed/26537133
http://dx.doi.org/10.1186/s12904-015-0053-8
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author van Riet Paap, Jasper
Mariani, Elena
Chattat, Rabih
Koopmans, Raymond
Kerhervé, Hélène
Leppert, Wojciech
Forycka, Maria
Radbruch, Lukas
Jaspers, Birgit
Vissers, Kris
Vernooij-Dassen, Myrra
Engels, Yvonne
author_facet van Riet Paap, Jasper
Mariani, Elena
Chattat, Rabih
Koopmans, Raymond
Kerhervé, Hélène
Leppert, Wojciech
Forycka, Maria
Radbruch, Lukas
Jaspers, Birgit
Vissers, Kris
Vernooij-Dassen, Myrra
Engels, Yvonne
author_sort van Riet Paap, Jasper
collection PubMed
description BACKGROUND: People with dementia can benefit from a palliative care approach. Recommendations, such as those of the EAPC have been proposed to strengthen the provision of palliative care for this group of patients. Yet, it remains challenging for professionals to identify when a person with dementia is in need of palliative care. The objective of this study therefore was to explore when professionals in long-term care settings consider a person with dementia in need of palliative care. METHODS: Teams with in total 84 professionals working in 13 long-term care settings from 6 countries (France, Germany, Italy, Norway, Poland and the Netherlands) received a case-vignette concerning a person with dementia recently admitted to a nursing home. Teams were asked to discuss when they considered people with dementia eligible for palliative care. The constant comparative method was used to analyse their answers. RESULTS: Three different time points in the disease trajectory when people with dementia were considered to be eligible for palliative care were extracted: (1) early in the disease trajectory; (2) when signs and symptoms of advanced dementia are present; and (3) from the time point that curative treatment of co-morbidities is futile. Yet, none of these time points was uniformly considered by the professional teams across Europe. In some cases, professionals working in the same nursing home didn’t even reach consensus when considering persons with dementia eligible for palliative care. CONCLUSION: The results of the study identified that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care.
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spelling pubmed-46324782015-11-05 Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals van Riet Paap, Jasper Mariani, Elena Chattat, Rabih Koopmans, Raymond Kerhervé, Hélène Leppert, Wojciech Forycka, Maria Radbruch, Lukas Jaspers, Birgit Vissers, Kris Vernooij-Dassen, Myrra Engels, Yvonne BMC Palliat Care Research Article BACKGROUND: People with dementia can benefit from a palliative care approach. Recommendations, such as those of the EAPC have been proposed to strengthen the provision of palliative care for this group of patients. Yet, it remains challenging for professionals to identify when a person with dementia is in need of palliative care. The objective of this study therefore was to explore when professionals in long-term care settings consider a person with dementia in need of palliative care. METHODS: Teams with in total 84 professionals working in 13 long-term care settings from 6 countries (France, Germany, Italy, Norway, Poland and the Netherlands) received a case-vignette concerning a person with dementia recently admitted to a nursing home. Teams were asked to discuss when they considered people with dementia eligible for palliative care. The constant comparative method was used to analyse their answers. RESULTS: Three different time points in the disease trajectory when people with dementia were considered to be eligible for palliative care were extracted: (1) early in the disease trajectory; (2) when signs and symptoms of advanced dementia are present; and (3) from the time point that curative treatment of co-morbidities is futile. Yet, none of these time points was uniformly considered by the professional teams across Europe. In some cases, professionals working in the same nursing home didn’t even reach consensus when considering persons with dementia eligible for palliative care. CONCLUSION: The results of the study identified that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care. BioMed Central 2015-11-04 /pmc/articles/PMC4632478/ /pubmed/26537133 http://dx.doi.org/10.1186/s12904-015-0053-8 Text en © van Riet Paap et al. 2015 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
van Riet Paap, Jasper
Mariani, Elena
Chattat, Rabih
Koopmans, Raymond
Kerhervé, Hélène
Leppert, Wojciech
Forycka, Maria
Radbruch, Lukas
Jaspers, Birgit
Vissers, Kris
Vernooij-Dassen, Myrra
Engels, Yvonne
Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
title Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
title_full Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
title_fullStr Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
title_full_unstemmed Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
title_short Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
title_sort identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4632478/
https://www.ncbi.nlm.nih.gov/pubmed/26537133
http://dx.doi.org/10.1186/s12904-015-0053-8
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