Initial report of the osteogenesis imperfecta adult natural history initiative

BACKGROUND: A better understanding of the natural history of osteogenesis imperfecta (OI) in adulthood should improve health care for patients with this rare condition. METHODS: The Osteogenesis Imperfecta Foundation established the Adult Natural History Initiative (ANHI) in 2010 to give voice to th...

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Detalles Bibliográficos
Autores principales: Tosi, Laura L., Oetgen, Matthew E., Floor, Marianne K., Huber, Mary Beth, Kennelly, Ann M., McCarter, Robert J., Rak, Melanie F., Simmonds, Barbara J., Simpson, Melissa D., Tucker, Carole A., McKiernan, Fergus E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4650321/
https://www.ncbi.nlm.nih.gov/pubmed/26578084
http://dx.doi.org/10.1186/s13023-015-0362-2

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