Cargando…

What matters to children with CFS/ME? A conceptual model as the first stage in developing a PROM

BACKGROUND: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. AIM: The aim of this study was t...

Descripción completa

Detalles Bibliográficos
Autores principales:	Parslow, Roxanne, Patel, Aarti, Beasant, Lucy, Haywood, Kirstie, Johnson, Debbie, Crawley, Esther
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BMJ Publishing Group 2015
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4680202/ https://www.ncbi.nlm.nih.gov/pubmed/26453575 http://dx.doi.org/10.1136/archdischild-2015-308831

Ejemplares similares

Complexity, context and considerations for treatment in CFS/ME: children’s versus health professional’s conceptual model
por: Potgieter, Roxanne, et al.
Publicado: (2015)

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking
por: Parslow, Roxanne M., et al.
Publicado: (2020)

Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): perspectives of health professionals from specialist services.
por: Parslow, Roxanne M., et al.
Publicado: (2017)

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children
por: Parslow, Roxanne M., et al.
Publicado: (2019)

Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): interviews with adolescents and parents
por: Parslow, Roxanne M, et al.
Publicado: (2018)

Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies
por: Parslow, Roxanne M, et al.
Publicado: (2017)

Psychological wellbeing and quality-of-life among siblings of paediatric CFS/ME patients: A mixed-methods study
por: Velleman, Sophie, et al.
Publicado: (2015)

Interventions to treat pain in paediatric CFS/ME: a systematic review
por: Ascough, Caitlin, et al.
Publicado: (2020)

Adult patients’ experiences of NHS specialist services for chronic fatigue syndrome (CFS/ME): a qualitative study in England
por: Broughton, Jessica, et al.
Publicado: (2017)

The importance of school in the management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): issues identified by adolescents and their families
por: Clery, Philippa, et al.
Publicado: (2022)

Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods
por: Brigden, Amberly, et al.
Publicado: (2018)

Correction: Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods
por: Brigden, Amberly, et al.
Publicado: (2023)

Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to activity management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): amendment to the published protocol
por: Anderson, Emma, et al.
Publicado: (2019)

Using the internet to cope with chronic fatigue syndrome/myalgic encephalomyelitis in adolescence: a qualitative study
por: Brigden, Amberly, et al.
Publicado: (2018)

Mental health screening in adolescents with CFS/ME
por: Loades, Maria E., et al.
Publicado: (2021)

The impact of CFS/ME on employment and productivity in the UK: a cross-sectional study based on the CFS/ME national outcomes database
por: Collin, Simon M, et al.
Publicado: (2011)

Correction: The impact of CFS/ME on employment and productivity in the UK: a cross-sectional study based on the CFS/ME national outcomes database
por: Collin, Simon M, et al.
Publicado: (2023)

Comparing specialist medical care with specialist medical care plus the Lightning Process® for chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME): study protocol for a randomised controlled trial (SMILE Trial)
por: Crawley, Esther, et al.
Publicado: (2013)

Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to Activity Management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): protocol for a randomised controlled trial
por: Baos, Sarah, et al.
Publicado: (2018)

‘It’s personal to me’: A qualitative study of depression in young people with CFS/ME
por: Taylor, Anna K, et al.
Publicado: (2016)

What treatments work for anxiety in children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)? Systematic review
por: Stoll, Sarah Victoria Ellen, et al.
Publicado: (2017)

Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME
por: Cheshire, Anna, et al.
Publicado: (2020)

The feasibility and acceptability of an early intervention in primary care to prevent chronic fatigue syndrome (CFS) in adults: randomised controlled trial
por: O’Dowd, Hazel, et al.
Publicado: (2020)

The treatment preferences of adolescents and their parents, what has the smile RCT shown us? Smile: specialist medical intervention and lightning evaluation
por: Beasant, Lucy, et al.
Publicado: (2015)

Treatment for paediatric chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) and comorbid depression: a systematic review
por: Loades, Maria E, et al.
Publicado: (2016)

How Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Progresses: The Natural History of ME/CFS
por: Nacul, Luis, et al.
Publicado: (2020)

Our Evolving Understanding of ME/CFS
por: Friedman, Kenneth J., et al.
Publicado: (2021)

ME/CFS: Past, Present and Future
por: Weir, William, et al.
Publicado: (2021)

Endothelial dysfunction in ME/CFS patients
por: Sandvik, Miriam Kristine, et al.
Publicado: (2023)

The Economic impact of ME/CFS: Individual and societal costs
por: Jason, Leonard A, et al.
Publicado: (2008)

Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort
por: Collin, Simon M., et al.
Publicado: (2018)

Perceptions of European ME/CFS Experts Concerning Knowledge and Understanding of ME/CFS among Primary Care Physicians in Europe: A Report from the European ME/CFS Research Network (EUROMENE)
por: Cullinan, John, et al.
Publicado: (2021)

What stops children with a chronic illness accessing health care: a mixed methods study in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)
por: Webb, Carly M, et al.
Publicado: (2011)

Assessing the impact of headaches and the outcomes of treatment: A systematic review of patient-reported outcome measures (PROMs)
por: Haywood, Kirstie L, et al.
Publicado: (2017)

Advances in ME/CFS: Past, Present, and Future
por: Friedman, Kenneth J.
Publicado: (2019)

Biomedical Insights That Inform the Diagnosis of ME/CFS
por: Lidbury, Brett A., et al.
Publicado: (2020)

Three Cases of Severe ME/CFS in Adults
por: Williams, Leah R., et al.
Publicado: (2021)

Turning a Corner in ME/CFS Research
por: Pheby, Derek F. H., et al.
Publicado: (2021)

Das "Monster" ME/CFS wird greifbar
por: Stollhoff, Kirsten
Publicado: (2022)

Correction: What stops children with a chronic illness accessing health care: a mixed methods study in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)
por: Webb, Carly M, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_p4gn08664s41qvprbp0dfv2tcq