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Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the polic...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4692260/ https://www.ncbi.nlm.nih.gov/pubmed/26297747 http://dx.doi.org/10.1177/1556264615592387 |
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author | Merson, Laura Phong, Tran Viet Nhan, Le Nguyen Thanh Dung, Nguyen Thanh Ngan, Ta Thi Dieu Kinh, Nguyen Van Parker, Michael Bull, Susan |
author_facet | Merson, Laura Phong, Tran Viet Nhan, Le Nguyen Thanh Dung, Nguyen Thanh Ngan, Ta Thi Dieu Kinh, Nguyen Van Parker, Michael Bull, Susan |
author_sort | Merson, Laura |
collection | PubMed |
description | International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context. |
format | Online Article Text |
id | pubmed-4692260 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-46922602016-01-11 Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam Merson, Laura Phong, Tran Viet Nhan, Le Nguyen Thanh Dung, Nguyen Thanh Ngan, Ta Thi Dieu Kinh, Nguyen Van Parker, Michael Bull, Susan J Empir Res Hum Res Ethics Ethics and Best Practices in Data Sharing in Low and Middle Income Settings International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context. SAGE Publications 2015-07 /pmc/articles/PMC4692260/ /pubmed/26297747 http://dx.doi.org/10.1177/1556264615592387 Text en © The Author(s) 2015 http://creativecommons.org/licenses/by/3.0/ This article is distributed under the terms of the Creative Commons Attribution 3.0 License (http://www.creativecommons.org/licenses/by/3.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Ethics and Best Practices in Data Sharing in Low and Middle Income Settings Merson, Laura Phong, Tran Viet Nhan, Le Nguyen Thanh Dung, Nguyen Thanh Ngan, Ta Thi Dieu Kinh, Nguyen Van Parker, Michael Bull, Susan Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam |
title | Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam |
title_full | Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam |
title_fullStr | Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam |
title_full_unstemmed | Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam |
title_short | Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam |
title_sort | trust, respect, and reciprocity: informing culturally appropriate data-sharing practice in vietnam |
topic | Ethics and Best Practices in Data Sharing in Low and Middle Income Settings |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4692260/ https://www.ncbi.nlm.nih.gov/pubmed/26297747 http://dx.doi.org/10.1177/1556264615592387 |
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