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Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam

International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the polic...

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Autores principales: Merson, Laura, Phong, Tran Viet, Nhan, Le Nguyen Thanh, Dung, Nguyen Thanh, Ngan, Ta Thi Dieu, Kinh, Nguyen Van, Parker, Michael, Bull, Susan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4692260/
https://www.ncbi.nlm.nih.gov/pubmed/26297747
http://dx.doi.org/10.1177/1556264615592387
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author Merson, Laura
Phong, Tran Viet
Nhan, Le Nguyen Thanh
Dung, Nguyen Thanh
Ngan, Ta Thi Dieu
Kinh, Nguyen Van
Parker, Michael
Bull, Susan
author_facet Merson, Laura
Phong, Tran Viet
Nhan, Le Nguyen Thanh
Dung, Nguyen Thanh
Ngan, Ta Thi Dieu
Kinh, Nguyen Van
Parker, Michael
Bull, Susan
author_sort Merson, Laura
collection PubMed
description International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context.
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spelling pubmed-46922602016-01-11 Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam Merson, Laura Phong, Tran Viet Nhan, Le Nguyen Thanh Dung, Nguyen Thanh Ngan, Ta Thi Dieu Kinh, Nguyen Van Parker, Michael Bull, Susan J Empir Res Hum Res Ethics Ethics and Best Practices in Data Sharing in Low and Middle Income Settings International science funders and publishers are driving a growing trend in data sharing. There is mounting pressure on researchers in low- and middle-income settings to conform to new sharing policies, despite minimal empirically grounded accounts of the ethical challenges of implementing the policies in these settings. This study used in-depth interviews and focus group discussions with 48 stakeholders in Vietnam to explore the experiences, attitudes, and expectations that inform ethical and effective approaches to sharing clinical research data. Distinct views on the role of trust, respect, and reciprocity were among those that emerged to inform culturally appropriate best practices. We conclude by discussing the challenges that authors of data-sharing policies should consider in this unique context. SAGE Publications 2015-07 /pmc/articles/PMC4692260/ /pubmed/26297747 http://dx.doi.org/10.1177/1556264615592387 Text en © The Author(s) 2015 http://creativecommons.org/licenses/by/3.0/ This article is distributed under the terms of the Creative Commons Attribution 3.0 License (http://www.creativecommons.org/licenses/by/3.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Ethics and Best Practices in Data Sharing in Low and Middle Income Settings
Merson, Laura
Phong, Tran Viet
Nhan, Le Nguyen Thanh
Dung, Nguyen Thanh
Ngan, Ta Thi Dieu
Kinh, Nguyen Van
Parker, Michael
Bull, Susan
Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
title Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
title_full Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
title_fullStr Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
title_full_unstemmed Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
title_short Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
title_sort trust, respect, and reciprocity: informing culturally appropriate data-sharing practice in vietnam
topic Ethics and Best Practices in Data Sharing in Low and Middle Income Settings
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4692260/
https://www.ncbi.nlm.nih.gov/pubmed/26297747
http://dx.doi.org/10.1177/1556264615592387
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