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Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods

BACKGROUND: Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limit...

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Autores principales: Njeru, Jane W., Patten, Christi A., Hanza, Marcelo M. K., Brockman, Tabetha A., Ridgeway, Jennifer L., Weis, Jennifer A., Clark, Matthew M., Goodson, Miriam, Osman, Ahmed, Porraz-Capetillo, Graciela, Hared, Abdullah, Myers, Allison, Sia, Irene G., Wieland, Mark L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4696160/
https://www.ncbi.nlm.nih.gov/pubmed/26715465
http://dx.doi.org/10.1186/s12889-015-2628-y
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author Njeru, Jane W.
Patten, Christi A.
Hanza, Marcelo M. K.
Brockman, Tabetha A.
Ridgeway, Jennifer L.
Weis, Jennifer A.
Clark, Matthew M.
Goodson, Miriam
Osman, Ahmed
Porraz-Capetillo, Graciela
Hared, Abdullah
Myers, Allison
Sia, Irene G.
Wieland, Mark L.
author_facet Njeru, Jane W.
Patten, Christi A.
Hanza, Marcelo M. K.
Brockman, Tabetha A.
Ridgeway, Jennifer L.
Weis, Jennifer A.
Clark, Matthew M.
Goodson, Miriam
Osman, Ahmed
Porraz-Capetillo, Graciela
Hared, Abdullah
Myers, Allison
Sia, Irene G.
Wieland, Mark L.
author_sort Njeru, Jane W.
collection PubMed
description BACKGROUND: Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limited English proficiency minimizes access to and affects the applicability of the existing health education opportunities. Community-based participatory research (CBPR), whereby community members and academia partner in an equitable relationship through all phases of the research, is an intuitive approach to develop these interventions. The main objective of this study was to develop a diabetes digital storytelling intervention with and for immigrant and refugee populations. METHODS: We used a CBPR approach to develop a diabetes digital storytelling intervention with and for immigrant and refugee Somali and Latino communities. Building on an established CBPR partnership, we conducted focus groups among community members with type II diabetes for a dual purpose: 1) to inform the intervention as it related to four domains of diabetes self-management (medication management, glucose self-monitoring, physical activity, and nutrition); 2) to identify champion storytellers for the intervention development. Eight participants attended a facilitated workshop for the creation of the digital stories. RESULTS: Each of the eight storytellers, from the Somali and Latino communities with diabetes (four from each group), created a powerful and compelling story about their struggles and accomplishments related to the four domains of diabetes self-management. CONCLUSIONS: This report is on a systematic, participatory process for the successful development of a diabetes storytelling intervention for Somali and Latino adults. Processes and products from this work may inform the work of other CBPR partnerships. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1186/s12889-015-2628-y) contains supplementary material, which is available to authorized users.
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spelling pubmed-46961602015-12-31 Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods Njeru, Jane W. Patten, Christi A. Hanza, Marcelo M. K. Brockman, Tabetha A. Ridgeway, Jennifer L. Weis, Jennifer A. Clark, Matthew M. Goodson, Miriam Osman, Ahmed Porraz-Capetillo, Graciela Hared, Abdullah Myers, Allison Sia, Irene G. Wieland, Mark L. BMC Public Health Research Article BACKGROUND: Immigrants and refugees are affected by diabetes-related health disparities, with higher rates of incident diabetes and sub-optimal diabetes outcomes. Digital storytelling interventions for chronic diseases, such as diabetes may be especially powerful among immigrants because often limited English proficiency minimizes access to and affects the applicability of the existing health education opportunities. Community-based participatory research (CBPR), whereby community members and academia partner in an equitable relationship through all phases of the research, is an intuitive approach to develop these interventions. The main objective of this study was to develop a diabetes digital storytelling intervention with and for immigrant and refugee populations. METHODS: We used a CBPR approach to develop a diabetes digital storytelling intervention with and for immigrant and refugee Somali and Latino communities. Building on an established CBPR partnership, we conducted focus groups among community members with type II diabetes for a dual purpose: 1) to inform the intervention as it related to four domains of diabetes self-management (medication management, glucose self-monitoring, physical activity, and nutrition); 2) to identify champion storytellers for the intervention development. Eight participants attended a facilitated workshop for the creation of the digital stories. RESULTS: Each of the eight storytellers, from the Somali and Latino communities with diabetes (four from each group), created a powerful and compelling story about their struggles and accomplishments related to the four domains of diabetes self-management. CONCLUSIONS: This report is on a systematic, participatory process for the successful development of a diabetes storytelling intervention for Somali and Latino adults. Processes and products from this work may inform the work of other CBPR partnerships. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (doi:10.1186/s12889-015-2628-y) contains supplementary material, which is available to authorized users. BioMed Central 2015-12-29 /pmc/articles/PMC4696160/ /pubmed/26715465 http://dx.doi.org/10.1186/s12889-015-2628-y Text en © Njeru et al. 2015 Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
spellingShingle Research Article
Njeru, Jane W.
Patten, Christi A.
Hanza, Marcelo M. K.
Brockman, Tabetha A.
Ridgeway, Jennifer L.
Weis, Jennifer A.
Clark, Matthew M.
Goodson, Miriam
Osman, Ahmed
Porraz-Capetillo, Graciela
Hared, Abdullah
Myers, Allison
Sia, Irene G.
Wieland, Mark L.
Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods
title Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods
title_full Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods
title_fullStr Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods
title_full_unstemmed Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods
title_short Stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods
title_sort stories for change: development of a diabetes digital storytelling intervention for refugees and immigrants to minnesota using qualitative methods
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4696160/
https://www.ncbi.nlm.nih.gov/pubmed/26715465
http://dx.doi.org/10.1186/s12889-015-2628-y
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