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Controlled Access under Review: Improving the Governance of Genomic Data Access
In parallel with massive genomic data production, data sharing practices have rapidly expanded over the last decade. To ensure authorized access to data, access review by data access committees (DACs) has been utilized as one potential solution. Here we discuss core elements to be integrated into th...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Public Library of Science
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4697814/ https://www.ncbi.nlm.nih.gov/pubmed/26720729 http://dx.doi.org/10.1371/journal.pbio.1002339 |
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author | Shabani, Mahsa Dyke, Stephanie O. M. Joly, Yann Borry, Pascal |
author_facet | Shabani, Mahsa Dyke, Stephanie O. M. Joly, Yann Borry, Pascal |
author_sort | Shabani, Mahsa |
collection | PubMed |
description | In parallel with massive genomic data production, data sharing practices have rapidly expanded over the last decade. To ensure authorized access to data, access review by data access committees (DACs) has been utilized as one potential solution. Here we discuss core elements to be integrated into the fabric of access review by both established and emerging DACs in order to foster fair, efficient, and responsible access to datasets. We particularly highlight the fact that the access review process could be adversely influenced by the potential conflicts of interest of data producers, particularly when they are directly involved in DACs management. Therefore, in structuring DACs and access procedures, possible data withholding by data producers should receive thorough attention. |
format | Online Article Text |
id | pubmed-4697814 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | Public Library of Science |
record_format | MEDLINE/PubMed |
spelling | pubmed-46978142016-01-13 Controlled Access under Review: Improving the Governance of Genomic Data Access Shabani, Mahsa Dyke, Stephanie O. M. Joly, Yann Borry, Pascal PLoS Biol Perspective In parallel with massive genomic data production, data sharing practices have rapidly expanded over the last decade. To ensure authorized access to data, access review by data access committees (DACs) has been utilized as one potential solution. Here we discuss core elements to be integrated into the fabric of access review by both established and emerging DACs in order to foster fair, efficient, and responsible access to datasets. We particularly highlight the fact that the access review process could be adversely influenced by the potential conflicts of interest of data producers, particularly when they are directly involved in DACs management. Therefore, in structuring DACs and access procedures, possible data withholding by data producers should receive thorough attention. Public Library of Science 2015-12-31 /pmc/articles/PMC4697814/ /pubmed/26720729 http://dx.doi.org/10.1371/journal.pbio.1002339 Text en © 2015 Shabani et al http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are properly credited. |
spellingShingle | Perspective Shabani, Mahsa Dyke, Stephanie O. M. Joly, Yann Borry, Pascal Controlled Access under Review: Improving the Governance of Genomic Data Access |
title | Controlled Access under Review: Improving the Governance of Genomic Data Access |
title_full | Controlled Access under Review: Improving the Governance of Genomic Data Access |
title_fullStr | Controlled Access under Review: Improving the Governance of Genomic Data Access |
title_full_unstemmed | Controlled Access under Review: Improving the Governance of Genomic Data Access |
title_short | Controlled Access under Review: Improving the Governance of Genomic Data Access |
title_sort | controlled access under review: improving the governance of genomic data access |
topic | Perspective |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4697814/ https://www.ncbi.nlm.nih.gov/pubmed/26720729 http://dx.doi.org/10.1371/journal.pbio.1002339 |
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