Parental perspectives on consent for participation in large-scale, non-biological data repositories

BACKGROUND: Data sharing presents several challenges to the informed consent process. Unique challenges emerge when sharing pediatric or pregnancy-related data. Here, parent preferences for sharing non-biological data are examined. METHODS: Groups (n = 4 groups, 18 participants) and individual inter...

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Detalles Bibliográficos
Autores principales: Manhas, Kiran Pohar, Page, Stacey, Dodd, Shawn X., Letourneau, Nicole, Ambrose, Aleta, Cui, Xinjie, Tough, Suzanne C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2016
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4720627/
https://www.ncbi.nlm.nih.gov/pubmed/26790860
http://dx.doi.org/10.1186/s40504-016-0034-6

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