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Engaging patients through open notes: an evaluation using mixed methods
OBJECTIVES: (A) To gain insights into the experiences of patients invited to view their doctors’ visit notes, with a focus on those who review multiple notes; (B) to examine the relationships among fully transparent electronic medical records and quality of care, the patient-doctor relationship, pat...
Autores principales: | , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4735137/ https://www.ncbi.nlm.nih.gov/pubmed/26826154 http://dx.doi.org/10.1136/bmjopen-2015-010034 |
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author | Esch, Tobias Mejilla, Roanne Anselmo, Melissa Podtschaske, Beatrice Delbanco, Tom Walker, Jan |
author_facet | Esch, Tobias Mejilla, Roanne Anselmo, Melissa Podtschaske, Beatrice Delbanco, Tom Walker, Jan |
author_sort | Esch, Tobias |
collection | PubMed |
description | OBJECTIVES: (A) To gain insights into the experiences of patients invited to view their doctors’ visit notes, with a focus on those who review multiple notes; (B) to examine the relationships among fully transparent electronic medical records and quality of care, the patient-doctor relationship, patient engagement, self-care, self-management skills and clinical outcomes. DESIGN: Mixed methods qualitative study: analyses of survey data, including content analysis of free-text answers, and quantitative-descriptive measures combined with semistructured individual interviews, patient activation measures, and member checks. SETTING: Greater Boston, USA. PARTICIPANTS: Patients cared for by primary care physicians (PCPs) at the Beth Israel Deaconess Medical Center who had electronic access to their PCP visit notes. Among those submitting surveys, 576 free-text answers were identified and analysed (414 from female patients, 162 from male patients; 23–88 years). In addition, 13 patients (9 female, 4 male; 58–87 years) were interviewed. RESULTS: Patient experiences indicate improved understanding (of health information), better relationships (with doctors), better quality (adherence and compliance; keeping track) and improved self-care (patient-centredness, empowerment). Patients want more doctors to offer access to their notes, and some wish to contribute to their generation. Those patients with repeated experience reviewing notes express fewer concerns and more perceived benefits. CONCLUSIONS: As the use of fully transparent medical records spreads, it is important to gain a deeper understanding of possible benefits or harms, and to characterise target populations that may require varying modes of delivery. Patient desires for expansion of this practice extend to specialty care and settings beyond the physician's office. Patients are also interested in becoming involved actively in the generation of their medical records. The OpenNotes movement may increase patient activation and engagement in important ways. |
format | Online Article Text |
id | pubmed-4735137 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2016 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-47351372016-02-09 Engaging patients through open notes: an evaluation using mixed methods Esch, Tobias Mejilla, Roanne Anselmo, Melissa Podtschaske, Beatrice Delbanco, Tom Walker, Jan BMJ Open Patient-Centred Medicine OBJECTIVES: (A) To gain insights into the experiences of patients invited to view their doctors’ visit notes, with a focus on those who review multiple notes; (B) to examine the relationships among fully transparent electronic medical records and quality of care, the patient-doctor relationship, patient engagement, self-care, self-management skills and clinical outcomes. DESIGN: Mixed methods qualitative study: analyses of survey data, including content analysis of free-text answers, and quantitative-descriptive measures combined with semistructured individual interviews, patient activation measures, and member checks. SETTING: Greater Boston, USA. PARTICIPANTS: Patients cared for by primary care physicians (PCPs) at the Beth Israel Deaconess Medical Center who had electronic access to their PCP visit notes. Among those submitting surveys, 576 free-text answers were identified and analysed (414 from female patients, 162 from male patients; 23–88 years). In addition, 13 patients (9 female, 4 male; 58–87 years) were interviewed. RESULTS: Patient experiences indicate improved understanding (of health information), better relationships (with doctors), better quality (adherence and compliance; keeping track) and improved self-care (patient-centredness, empowerment). Patients want more doctors to offer access to their notes, and some wish to contribute to their generation. Those patients with repeated experience reviewing notes express fewer concerns and more perceived benefits. CONCLUSIONS: As the use of fully transparent medical records spreads, it is important to gain a deeper understanding of possible benefits or harms, and to characterise target populations that may require varying modes of delivery. Patient desires for expansion of this practice extend to specialty care and settings beyond the physician's office. Patients are also interested in becoming involved actively in the generation of their medical records. The OpenNotes movement may increase patient activation and engagement in important ways. BMJ Publishing Group 2016-01-29 /pmc/articles/PMC4735137/ /pubmed/26826154 http://dx.doi.org/10.1136/bmjopen-2015-010034 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://www.bmj.com/company/products-services/rights-and-licensing/ This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ |
spellingShingle | Patient-Centred Medicine Esch, Tobias Mejilla, Roanne Anselmo, Melissa Podtschaske, Beatrice Delbanco, Tom Walker, Jan Engaging patients through open notes: an evaluation using mixed methods |
title | Engaging patients through open notes: an evaluation using mixed methods |
title_full | Engaging patients through open notes: an evaluation using mixed methods |
title_fullStr | Engaging patients through open notes: an evaluation using mixed methods |
title_full_unstemmed | Engaging patients through open notes: an evaluation using mixed methods |
title_short | Engaging patients through open notes: an evaluation using mixed methods |
title_sort | engaging patients through open notes: an evaluation using mixed methods |
topic | Patient-Centred Medicine |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4735137/ https://www.ncbi.nlm.nih.gov/pubmed/26826154 http://dx.doi.org/10.1136/bmjopen-2015-010034 |
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