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Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma

AIM: This aim of this study was to describe how legal guardians assessed health‐related quality of life and HIV‐related stigma in children with the human immunodeficiency virus (HIV) compared to the children's own ratings. METHODS: A cross‐sectional nationwide study was performed to compare how...

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Autores principales: Rydström, Lise‐Lott, Wiklander, Maria, Ygge, Britt‐Marie, Navér, Lars, Eriksson, Lars E.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2015
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4744666/
https://www.ncbi.nlm.nih.gov/pubmed/26042552
http://dx.doi.org/10.1111/apa.13062
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author Rydström, Lise‐Lott
Wiklander, Maria
Ygge, Britt‐Marie
Navér, Lars
Eriksson, Lars E.
author_facet Rydström, Lise‐Lott
Wiklander, Maria
Ygge, Britt‐Marie
Navér, Lars
Eriksson, Lars E.
author_sort Rydström, Lise‐Lott
collection PubMed
description AIM: This aim of this study was to describe how legal guardians assessed health‐related quality of life and HIV‐related stigma in children with the human immunodeficiency virus (HIV) compared to the children's own ratings. METHODS: A cross‐sectional nationwide study was performed to compare how 37 children aged from eight to 16 years of age with perinatal HIV, and their legal guardians, assessed the children's health‐related quality of life and HIV‐related stigma. Data were collected using the 37‐item DISABKIDS Chronic Generic Module and a short eight‐item version of the HIV stigma scale. RESULTS: Intraclass correlations indicated concordance between the legal guardians' ratings and the children's own ratings of the child's health‐related quality of life and HIV‐related stigma. There were no statistically significant differences between the ratings of the two groups and gender did not have any impact on the results. Both groups indicated that the children had concerns about being open about their HIV status. CONCLUSION: The results of this study indicated that legal guardians understood how their children perceived their health‐related quality of life and HIV‐related stigma. The results also indicated the need for interventions to support both the children and legal guardians when it came to disclosing the child's HIV status.
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spelling pubmed-47446662016-02-18 Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma Rydström, Lise‐Lott Wiklander, Maria Ygge, Britt‐Marie Navér, Lars Eriksson, Lars E. Acta Paediatr Regular Articles AIM: This aim of this study was to describe how legal guardians assessed health‐related quality of life and HIV‐related stigma in children with the human immunodeficiency virus (HIV) compared to the children's own ratings. METHODS: A cross‐sectional nationwide study was performed to compare how 37 children aged from eight to 16 years of age with perinatal HIV, and their legal guardians, assessed the children's health‐related quality of life and HIV‐related stigma. Data were collected using the 37‐item DISABKIDS Chronic Generic Module and a short eight‐item version of the HIV stigma scale. RESULTS: Intraclass correlations indicated concordance between the legal guardians' ratings and the children's own ratings of the child's health‐related quality of life and HIV‐related stigma. There were no statistically significant differences between the ratings of the two groups and gender did not have any impact on the results. Both groups indicated that the children had concerns about being open about their HIV status. CONCLUSION: The results of this study indicated that legal guardians understood how their children perceived their health‐related quality of life and HIV‐related stigma. The results also indicated the need for interventions to support both the children and legal guardians when it came to disclosing the child's HIV status. John Wiley and Sons Inc. 2015-07-07 2015-09 /pmc/articles/PMC4744666/ /pubmed/26042552 http://dx.doi.org/10.1111/apa.13062 Text en ©2015 The Authors. Acta Pædiatrica published by John Wiley & Sons Ltd on behalf of Foundation Acta Pædiatrica This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs (http://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Regular Articles
Rydström, Lise‐Lott
Wiklander, Maria
Ygge, Britt‐Marie
Navér, Lars
Eriksson, Lars E.
Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma
title Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma
title_full Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma
title_fullStr Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma
title_full_unstemmed Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma
title_short Legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma
title_sort legal guardians understand how children with the human immunodeficiency virus perceive quality of life and stigma
topic Regular Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4744666/
https://www.ncbi.nlm.nih.gov/pubmed/26042552
http://dx.doi.org/10.1111/apa.13062
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