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Enhancing genomic laboratory reports from the patients' view: A qualitative analysis
The purpose of this study was to develop a family genomic laboratory report designed to communicate genome sequencing results to parents of children who were participating in a whole genome sequencing clinical research study. Semi‐structured interviews were conducted with parents of children who par...
Autores principales: | Stuckey, Heather, Williams, Janet L., Fan, Audrey L., Rahm, Alanna Kulchak, Green, Jamie, Feldman, Lynn, Bonhag, Michele, Zallen, Doris T., Segal, Michael M., Williams, Marc S. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2015
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4744953/ https://www.ncbi.nlm.nih.gov/pubmed/26086630 http://dx.doi.org/10.1002/ajmg.a.37174 |
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