Cargando…
Respecting Autonomy Over Time: Policy and Empirical Evidence on Re‐Consent in Longitudinal Biomedical Research
Re‐consent in research, the asking for a new consent if there is a change in protocol or to confirm the expectations of participants in case of change, is an under‐explored issue. There is little clarity as to what changes should trigger re‐consent and what impact a re‐consent exercise has on partic...
Autores principales: | Wallace, Susan E, Gourna, Elli G, Laurie, Graeme, Shoush, Osama, Wright, Jessica |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2015
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4762535/ https://www.ncbi.nlm.nih.gov/pubmed/25960157 http://dx.doi.org/10.1111/bioe.12165 |
Ejemplares similares
-
Tiered informed consent: respecting autonomy, agency and individuality in Africa
por: Tiffin, Nicki
Publicado: (2018) -
Family tree and ancestry inference: is there a need for a ‘generational’ consent?
por: Wallace, Susan E., et al.
Publicado: (2015) -
Consent and Autonomy in the Genomics Era
por: Horton, Rachel, et al.
Publicado: (2019) -
Organoid biobanking, autonomy and the limits of consent
por: Lewis, Jonathan, et al.
Publicado: (2022) -
A qualitative study of participants’ views on re-consent in a longitudinal biobank
por: Dixon-Woods, Mary, et al.
Publicado: (2017)