Cargando…

Ethics of Future Disclosure of Individual Risk Information in a Genetic Cohort Study: A Survey of Donor Preferences

BACKGROUND: Although genetic epidemiologic research has added an element of individualization to epidemiologic research, there is neither agreement nor much discussion on whether donors of genetic samples should be offered an opportunity to receive individualized results regarding their genetic susc...

Descripción completa

Detalles Bibliográficos
Autores principales:	Matsui, Kenji, Lie, Reidar K., Kita, Yoshikuni, Ueshima, Hirotsugu
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Japan Epidemiological Association 2008
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4771593/ https://www.ncbi.nlm.nih.gov/pubmed/18776708 http://dx.doi.org/10.2188/jea.JE2007425

Ejemplares similares

A Randomized Controlled Trial of Short and Standard-Length Consent Forms for a Genetic Cohort Study: Is Longer Better?
por: Matsui, Kenji, et al.
Publicado: (2012)

Attitudes towards transfers of human tissue samples across borders: An international survey of researchers and policy makers in five countries
por: Zhang, Xinqing, et al.
Publicado: (2010)

Association between C-Reactive Protein Levels and Functional Disability in the General Older-Population: The Takashima Study
por: Takashima, Naoyuki, et al.
Publicado: (2023)

Relationship of leisure-time and household physical activity level and type with cardiovascular disease: secondary analysis of the Takashima Study data
por: Iwase, Hiroaki, et al.
Publicado: (2022)

Panel Dataset of Ethical Commitment Disclosures in Malaysia
por: Hashim, Hafiza Aishah, et al.
Publicado: (2020)

Public preferences and attitudes towards the disclosure of medical errors: a survey in Iran
por: Heidari, Akram, et al.
Publicado: (2018)

Life Expectancy among Japanese of Different Smoking Status in Japan: NIPPON DATA80
por: Murakami, Yoshitaka, et al.
Publicado: (2007)

Conducting human challenge studies in LMICs: A survey of researchers and ethics committee members in Thailand
por: Kaewkungwal, Jaranit, et al.
Publicado: (2019)

Biographic and Disclosure Information
Publicado: (2012)

Biographic and Disclosure Information
Publicado: (2012)

Biographic and Disclosure Information
Publicado: (2012)

Biographic and Disclosure Information
Publicado: (2013)

Biographic and disclosure information
Publicado: (2013)

Biographic and disclosure information
Publicado: (2012)

What Unfavorable Factors Are Associated with Low Serum Total Cholesterol in a Japanese Population?
por: Mao, Xu, et al.
Publicado: (2007)

Cancer Survivors' Experiences With and Preferences for Medical Information Disclosure and Advance Care Planning: An Online Survey Among Indonesian Cancer Support Groups
por: Martina, Diah, et al.
Publicado: (2023)

The impact of environmental information disclosure on enterprises’ green preference of outbound investment: Evidence from China
por: Peng, Cheng, et al.
Publicado: (2022)

Linking Survey and Twitter Data: Informed Consent, Disclosure, Security, and Archiving
por: Sloan, Luke, et al.
Publicado: (2019)

Information Architecture for Data Disclosure
por: Pflughoeft, Kurt A., et al.
Publicado: (2022)

Identification of ethics committees based on authors’ disclosures: cross-sectional study of articles published in the European Journal of Anaesthesiology and a survey of ethics committees
por: Zoccatelli, Davide, et al.
Publicado: (2018)

Disclosure of cancer diagnosis: what Iranian patients do prefer?
por: Faridhosseini, Farhad, et al.
Publicado: (2010)

From information to follow-up: Ethical recommendations to facilitate the disclosure of amyloid PET scan results in a research setting
por: Vanderschaeghe, Gwendolien, et al.
Publicado: (2018)

Disclosure of diagnosis – Adherence – Couple or future of the past
por: Chirilă, Odette, et al.
Publicado: (2014)

Risk behavior disclosure among blood donors in Sao Paulo, Brazil
por: Gonçalez, Thelma Therezinha
Publicado: (2012)

Counselling on disclosure of gamete donation to donor offspring: a search for facts
por: Visser, M., et al.
Publicado: (2012)

Re-examining ethical obligations in the intensive care unit: HIV disclosure to surrogates
por: Vernillo, Anthony T, et al.
Publicado: (2007)

Is It Worth Knowing That You Might Die Tomorrow? Revisiting the Ethics of Prognosis Disclosure
por: Nakazawa, Eisuke, et al.
Publicado: (2022)

Association of Lipoprotein-associated Phospholipase A2 with Coronary Calcification among American and Japanese Men
por: El-Saed, Aiman, et al.
Publicado: (2007)

The Relationship between Environmental Information Disclosure and Profitability: A Comparison between Different Disclosure Styles
por: Yin, Hua, et al.
Publicado: (2019)

Disclosure of responsible information by Spanish local governments
por: Pache-Durán, María, et al.
Publicado: (2019)

Evaluation of Sustainability Information Disclosure Based on Entropy
por: Li, Ming, et al.
Publicado: (2018)

Understanding Disclosure of Health Information to Workplace Friends
por: Kingsley Westerman, Catherine Y., et al.
Publicado: (2022)

Consenting futures: professional views on social, clinical and ethical aspects of information feedback to embryo donors in human embryonic stem cell research
por: Ehrich, Kathryn, et al.
Publicado: (2010)

Ethics of allocation of donor organs
por: Bunnik, Eline M.
Publicado: (2023)

Relation of Serum Leptin and Adiponectin Level to Serum C-Reactive Protein: The INTERLIPID Study
por: Nakamura, Yasuyuki, et al.
Publicado: (2013)

Relationship of Higher-level Functional Capacity With Long-term Mortality in Japanese Older People: NIPPON DATA90
por: Nagata, Hideki, et al.
Publicado: (2023)

Assessment of noncompliance in self-disclosure of deferrable risk behaviors among blood donors
por: Venkatachalam, Bala Vignesh, et al.
Publicado: (2022)

Addressing ethical challenges of disclosure in dementia prediction: limitations of current guidelines and suggestions to proceed
por: Alpinar-Sencan, Zümrüt, et al.
Publicado: (2020)

Ethical Implications of the Fecal Microbiota Transplantation: Disclosure of a False-Positive HIV Test
por: Hollingshead, Caitlyn, et al.
Publicado: (2021)

Public Attitudes toward COVID-19 Vaccinations before Dawn in Japan: Ethics and Future Perspectives
por: Nakada, Haruka, et al.
Publicado: (2022)

Cannot write session to /tmp/vufind_sessions/sess_d4ptetaegsmaob24q1qfq92qvu