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Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project
Whole exome/genome sequencing (WES/WGS) is increasingly offered to ostensibly healthy individuals. Understanding the motivations and concerns of research participants seeking out personal WGS and their preferences regarding return-of-results and data sharing will help optimize protocols for WES/WGS....
Autores principales: | Sanderson, Saskia C, Linderman, Michael D, Suckiel, Sabrina A, Diaz, George A, Zinberg, Randi E, Ferryman, Kadija, Wasserstein, Melissa, Kasarskis, Andrew, Schadt, Eric E |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Nature Publishing Group
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4795230/ https://www.ncbi.nlm.nih.gov/pubmed/26036856 http://dx.doi.org/10.1038/ejhg.2015.118 |
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