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The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research
BACKGROUND: Thalassemia Major Disease is not only assumed as a health disorder, but also a social- economic problem in many countries. The costs of transport and preparation of drugs is considered as the greatest problems for more than 63.8% of the patients’ families. This study was conducted by aim...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Canadian Center of Science and Education
2015
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4796504/ https://www.ncbi.nlm.nih.gov/pubmed/25560333 http://dx.doi.org/10.5539/gjhs.v7n1p79 |
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author | Arbabisarjou, Azizollah Karimzaei, Tahmineh Jamalzaei, Abdolghaffar |
author_facet | Arbabisarjou, Azizollah Karimzaei, Tahmineh Jamalzaei, Abdolghaffar |
author_sort | Arbabisarjou, Azizollah |
collection | PubMed |
description | BACKGROUND: Thalassemia Major Disease is not only assumed as a health disorder, but also a social- economic problem in many countries. The costs of transport and preparation of drugs is considered as the greatest problems for more than 63.8% of the patients’ families. This study was conducted by aiming at describing biological experience among parents of patients with Thalassemia Major. METHOD: The current qualitative investigation was carried out on 32 parents of patients with Thalassemia Major and by means of unstructured interview in- depth through snowball sampling technique in 2013. The data were analyzed by conventional content analytical method. FINDINGS: The perception of biological experience of parents of patients with Thalassemia Major were classified based on participants’ experiences into three main themes including psychological experiences, physical experiences, and social experiences. 1) Psychological (mental) experiences comprise of two subclasses of the reduced self-confidence, deficient emotions and negative emotions; 2) Physical experiences consist of three subclasses of sleeping disorders, pains in various parts of body, and limited physical activity; and 3) Social experiences includes 3 subcategories of interpersonal relations, reduced income, job, and limitation in doing tasks. 4) Treatment experiences comprise of five sub-themes including 1- Shortage of drugs, blood, and filter etc; 2- Less experienced personnel; 3- Lack of training the patients’ parents by personnel in thalassemia ward; 4- Lack of visiting patients by physician in thalassemia ward; and 5- Inappropriate behavior of personnel toward patients and their parents. CONCLUSION: Thalassemia Major has affected negatively on several fields of health for these patients and their parents including physical, mental, economic, and social areas. Reducing these problems requires constant interventions and surveying health and medical status of these patients. |
format | Online Article Text |
id | pubmed-4796504 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2015 |
publisher | Canadian Center of Science and Education |
record_format | MEDLINE/PubMed |
spelling | pubmed-47965042016-04-21 The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research Arbabisarjou, Azizollah Karimzaei, Tahmineh Jamalzaei, Abdolghaffar Glob J Health Sci Articles BACKGROUND: Thalassemia Major Disease is not only assumed as a health disorder, but also a social- economic problem in many countries. The costs of transport and preparation of drugs is considered as the greatest problems for more than 63.8% of the patients’ families. This study was conducted by aiming at describing biological experience among parents of patients with Thalassemia Major. METHOD: The current qualitative investigation was carried out on 32 parents of patients with Thalassemia Major and by means of unstructured interview in- depth through snowball sampling technique in 2013. The data were analyzed by conventional content analytical method. FINDINGS: The perception of biological experience of parents of patients with Thalassemia Major were classified based on participants’ experiences into three main themes including psychological experiences, physical experiences, and social experiences. 1) Psychological (mental) experiences comprise of two subclasses of the reduced self-confidence, deficient emotions and negative emotions; 2) Physical experiences consist of three subclasses of sleeping disorders, pains in various parts of body, and limited physical activity; and 3) Social experiences includes 3 subcategories of interpersonal relations, reduced income, job, and limitation in doing tasks. 4) Treatment experiences comprise of five sub-themes including 1- Shortage of drugs, blood, and filter etc; 2- Less experienced personnel; 3- Lack of training the patients’ parents by personnel in thalassemia ward; 4- Lack of visiting patients by physician in thalassemia ward; and 5- Inappropriate behavior of personnel toward patients and their parents. CONCLUSION: Thalassemia Major has affected negatively on several fields of health for these patients and their parents including physical, mental, economic, and social areas. Reducing these problems requires constant interventions and surveying health and medical status of these patients. Canadian Center of Science and Education 2015-01 2014-08-15 /pmc/articles/PMC4796504/ /pubmed/25560333 http://dx.doi.org/10.5539/gjhs.v7n1p79 Text en Copyright: © Canadian Center of Science and Education http://creativecommons.org/licenses/by/3.0/ This is an open-access article distributed under the terms and conditions of the Creative Commons Attribution license (http://creativecommons.org/licenses/by/3.0/). |
spellingShingle | Articles Arbabisarjou, Azizollah Karimzaei, Tahmineh Jamalzaei, Abdolghaffar The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research |
title | The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research |
title_full | The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research |
title_fullStr | The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research |
title_full_unstemmed | The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research |
title_short | The Perception of Biological Experience in Patients With Major Thalassemia: A Qualitative Research |
title_sort | perception of biological experience in patients with major thalassemia: a qualitative research |
topic | Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4796504/ https://www.ncbi.nlm.nih.gov/pubmed/25560333 http://dx.doi.org/10.5539/gjhs.v7n1p79 |
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