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‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’
I provide an overview of the current state of the direct-to-consumer (DTC) genetic testing industry and the challenges that different types of testing pose for regulation. I consider the variety of services currently available. These range from health and ancestry tests to those for child talent, pa...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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Elsevier
2016
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4796702/ https://www.ncbi.nlm.nih.gov/pubmed/27047755 http://dx.doi.org/10.1016/j.atg.2016.01.001 |
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author | Phillips, Andelka M. |
author_facet | Phillips, Andelka M. |
author_sort | Phillips, Andelka M. |
collection | PubMed |
description | I provide an overview of the current state of the direct-to-consumer (DTC) genetic testing industry and the challenges that different types of testing pose for regulation. I consider the variety of services currently available. These range from health and ancestry tests to those for child talent, paternity, and infidelity. In light of the increasingly blurred lines among different categories of testing, I call for a broader discussion of DTC governance. I stress the importance of shifting our attention from the activities of the most prominent companies to viewing DTC genetics as an industry with a wide spectrum of services and raising a wide variety of issues. These issues go beyond questions of clinical utility and validity to those of data security, personal identity, race, and the nature of the family. Robust DTC testing has the power to provide meaningful clinical, genealogical and even forensic information to those who want it; in unscrupulous hands, however, it also has the power to deceive and exploit. I consider approaches to help ensure the former and minimize the latter. |
format | Online Article Text |
id | pubmed-4796702 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2016 |
publisher | Elsevier |
record_format | MEDLINE/PubMed |
spelling | pubmed-47967022016-04-04 ‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’ Phillips, Andelka M. Appl Transl Genom Article I provide an overview of the current state of the direct-to-consumer (DTC) genetic testing industry and the challenges that different types of testing pose for regulation. I consider the variety of services currently available. These range from health and ancestry tests to those for child talent, paternity, and infidelity. In light of the increasingly blurred lines among different categories of testing, I call for a broader discussion of DTC governance. I stress the importance of shifting our attention from the activities of the most prominent companies to viewing DTC genetics as an industry with a wide spectrum of services and raising a wide variety of issues. These issues go beyond questions of clinical utility and validity to those of data security, personal identity, race, and the nature of the family. Robust DTC testing has the power to provide meaningful clinical, genealogical and even forensic information to those who want it; in unscrupulous hands, however, it also has the power to deceive and exploit. I consider approaches to help ensure the former and minimize the latter. Elsevier 2016-02-02 /pmc/articles/PMC4796702/ /pubmed/27047755 http://dx.doi.org/10.1016/j.atg.2016.01.001 Text en © 2016 The Author https://creativecommons.org/licenses/by-nc-nd/4.0/This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (https://creativecommons.org/licenses/by-nc-nd/4.0/) , which allows reusers to copy and distribute the material in any medium or format in unadapted form only, for noncommercial purposes only, and only so long as attribution is given to the creator. |
spellingShingle | Article Phillips, Andelka M. ‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’ |
title | ‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’ |
title_full | ‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’ |
title_fullStr | ‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’ |
title_full_unstemmed | ‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’ |
title_short | ‘Only a click away — DTC genetics for ancestry, health, love…and more: A view of the business and regulatory landscape’ |
title_sort | ‘only a click away — dtc genetics for ancestry, health, love…and more: a view of the business and regulatory landscape’ |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4796702/ https://www.ncbi.nlm.nih.gov/pubmed/27047755 http://dx.doi.org/10.1016/j.atg.2016.01.001 |
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