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Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients
Nowadays, thalassaemia major (TM) patients are surviving into mature young adulthood; however, no published instrument exists to measure the expectations’ dimensionality among older TM patients in their thirties. This study seeks to validate a novel multidimensional expectation questionnaire suitabl...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Canadian Center of Science and Education
2016
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4804067/ https://www.ncbi.nlm.nih.gov/pubmed/26383219 http://dx.doi.org/10.5539/gjhs.v8n2p77 |
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author | Koutelekos, Ioannis G. Kyritsi, Helen Makis, Alexandros Vassalos, Constantine M Ktenas, Eftychios Polikandrioti, Maria Tzoumaka-Bakoula, Chryssa Chaliasos, Nikolaos |
author_facet | Koutelekos, Ioannis G. Kyritsi, Helen Makis, Alexandros Vassalos, Constantine M Ktenas, Eftychios Polikandrioti, Maria Tzoumaka-Bakoula, Chryssa Chaliasos, Nikolaos |
author_sort | Koutelekos, Ioannis G. |
collection | PubMed |
description | Nowadays, thalassaemia major (TM) patients are surviving into mature young adulthood; however, no published instrument exists to measure the expectations’ dimensionality among older TM patients in their thirties. This study seeks to validate a novel multidimensional expectation questionnaire suitable for TM patients (MEQ-TMP) reaching their fourth decade of life. In order to establish the psychometric properties of the instrument, data analysis was carried out. The principal component analysis revealed four components (‘Supportive social network’; ‘Raising one’s own family’; ‘Career advancement’; ‘Ability of daily activities’). Their cumulative contribution rate was 66.32%. Cronbach’s alpha for the total scale was 0.87. Each subscale had an alpha value above 0.70; three subscales were in the 0.80 range. MEQ-TMP reliability was proved to be good. The known-group method served as a strategy in examining the operationalisation of the questionnaire’s constructs. The present MEQ-TMP, developed for the aged group of TM patients, would be a useful tool for clinical personnel providing care to TM patients in understanding their outlook on life as they are growing up, to have better psychosocial adjustment to illness chronicity, live life as normally as possible, and fulfill their ambitions; thus enhancing their life satisfaction and quality of life. |
format | Online Article Text |
id | pubmed-4804067 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2016 |
publisher | Canadian Center of Science and Education |
record_format | MEDLINE/PubMed |
spelling | pubmed-48040672016-04-21 Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients Koutelekos, Ioannis G. Kyritsi, Helen Makis, Alexandros Vassalos, Constantine M Ktenas, Eftychios Polikandrioti, Maria Tzoumaka-Bakoula, Chryssa Chaliasos, Nikolaos Glob J Health Sci Articles Nowadays, thalassaemia major (TM) patients are surviving into mature young adulthood; however, no published instrument exists to measure the expectations’ dimensionality among older TM patients in their thirties. This study seeks to validate a novel multidimensional expectation questionnaire suitable for TM patients (MEQ-TMP) reaching their fourth decade of life. In order to establish the psychometric properties of the instrument, data analysis was carried out. The principal component analysis revealed four components (‘Supportive social network’; ‘Raising one’s own family’; ‘Career advancement’; ‘Ability of daily activities’). Their cumulative contribution rate was 66.32%. Cronbach’s alpha for the total scale was 0.87. Each subscale had an alpha value above 0.70; three subscales were in the 0.80 range. MEQ-TMP reliability was proved to be good. The known-group method served as a strategy in examining the operationalisation of the questionnaire’s constructs. The present MEQ-TMP, developed for the aged group of TM patients, would be a useful tool for clinical personnel providing care to TM patients in understanding their outlook on life as they are growing up, to have better psychosocial adjustment to illness chronicity, live life as normally as possible, and fulfill their ambitions; thus enhancing their life satisfaction and quality of life. Canadian Center of Science and Education 2016-02 2015-06-05 /pmc/articles/PMC4804067/ /pubmed/26383219 http://dx.doi.org/10.5539/gjhs.v8n2p77 Text en Copyright: © Canadian Center of Science and Education http://creativecommons.org/licenses/by/3.0/ This is an open-access article distributed under the terms and conditions of the Creative Commons Attribution license (http://creativecommons.org/licenses/by/3.0/). |
spellingShingle | Articles Koutelekos, Ioannis G. Kyritsi, Helen Makis, Alexandros Vassalos, Constantine M Ktenas, Eftychios Polikandrioti, Maria Tzoumaka-Bakoula, Chryssa Chaliasos, Nikolaos Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients |
title | Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients |
title_full | Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients |
title_fullStr | Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients |
title_full_unstemmed | Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients |
title_short | Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients |
title_sort | development and validation of a multidimensional expectation questionnaire for thalassaemia major patients |
topic | Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4804067/ https://www.ncbi.nlm.nih.gov/pubmed/26383219 http://dx.doi.org/10.5539/gjhs.v8n2p77 |
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