Survey of healthcare experiences of Australian adults living with rare diseases

BACKGROUND: Few studies have examined whether the healthcare needs of people living with rare diseases are being met. This study explores the experiences of Australian adults living with rare diseases in relation to diagnosis, information provision at the time of diagnosis, use of health and support...

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Detalles Bibliográficos
Autores principales: Molster, Caron, Urwin, Debra, Di Pietro, Louisa, Fookes, Megan, Petrie, Dianne, van der Laan, Sharon, Dawkins, Hugh
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2016
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4806449/
https://www.ncbi.nlm.nih.gov/pubmed/27012247
http://dx.doi.org/10.1186/s13023-016-0409-z

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