Cargando…

Transitional care in clinical networks for young people with juvenile idiopathic arthritis: current situation and challenges

Clinical networks for paediatric and adolescent rheumatology are evolving, and their effect and role in the transition process between paediatric and adult services are unknown. We therefore explored the experiences of those involved to try and understand this further. Health professionals, young pe...

Descripción completa

Detalles Bibliográficos
Autores principales:	Cruikshank, Mary, Foster, Helen E., Stewart, Jane, Davidson, Joyce E., Rapley, Tim
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer London 2015
Materias:	Original Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4819554/ https://www.ncbi.nlm.nih.gov/pubmed/25920453 http://dx.doi.org/10.1007/s10067-015-2950-x

Ejemplares similares

‘Snakes & Ladders’: factors influencing access to appropriate care for children and young people with suspected juvenile idiopathic arthritis – a qualitative study
por: Rapley, Tim, et al.
Publicado: (2021)

Successful stopping of biologic therapy for remission in children and young people with juvenile idiopathic arthritis
por: Kearsley-Fleet, Lianne, et al.
Publicado: (2022)

Intra-articular corticosteroid injections in juvenile idiopathic arthritis
por: Carrasco, Roberto, et al.
Publicado: (2014)

Validity of a three-variable Juvenile Arthritis Disease Activity Score in children with new-onset juvenile idiopathic arthritis
por: Mcerlane, Flora, et al.
Publicado: (2013)

Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis
por: Wilson, Neil, et al.
Publicado: (2022)

Influence of past breast feeding on pattern and severity of presentation of juvenile idiopathic arthritis
por: Hyrich, Kimme L, et al.
Publicado: (2016)

Trends in paediatric rheumatology referral times and disease activity indices over a ten-year period among children and young people with Juvenile Idiopathic Arthritis: results from the childhood arthritis prospective Study
por: McErlane, Flora, et al.
Publicado: (2016)

Can Seeding in the Clinic Reach a Wide Audience? A Proof of Concept Study on Spreading a Health Message About Juvenile Idiopathic Arthritis Using a Shareable Online Video
por: Fay, Michaela, et al.
Publicado: (2016)

Juvenile idiopathic arthritis: the transition to adulthood
por: Fernandes, Susana, et al.
Publicado: (2014)

Retrospective audit of access to care for children and young people diagnosed with localised scleroderma or juvenile systemic sclerosis in the United Kingdom
por: Hawley, Daniel P, et al.
Publicado: (2012)

The lived experience of juvenile idiopathic arthritis in young people receiving etanercept
por: Livermore, P, et al.
Publicado: (2016)

Use and effectiveness of rituximab in children and young people with juvenile idiopathic arthritis in a cohort study in the United Kingdom
por: Kearsley-Fleet, Lianne, et al.
Publicado: (2019)

Patterns of pain over time among children with juvenile idiopathic arthritis
por: Rashid, Amir, et al.
Publicado: (2018)

Growth patterns in early juvenile idiopathic arthritis: Results from the Childhood Arthritis Prospective Study (CAPS)
por: McErlane, Flora, et al.
Publicado: (2018)

Frequency of biologic switching and the outcomes of switching in children and young people with juvenile idiopathic arthritis: a national cohort study
por: Kearsley-Fleet, Lianne, et al.
Publicado: (2020)

Treatment prescribing patterns in a cohort of patients with juvenile idiopathic arthritis (JIA). Data from the childhood arthritis prospective study (CAPS)
por: Davies, Rebecca, et al.
Publicado: (2014)

Treatment prescribing patterns in patients with juvenile idiopathic arthritis (JIA): Analysis from the UK Childhood Arthritis Prospective Study (CAPS)()()
por: Davies, Rebecca, et al.
Publicado: (2016)

Looking through the patient lens – Improving best practice for young people with juvenile idiopathic arthritis transitioning into adult care
por: Howland, Samantha, et al.
Publicado: (2015)

Thymic function in juvenile idiopathic arthritis
por: Lorenzi, A R, et al.
Publicado: (2008)

Agreement between Proxy and Adolescent Assessment of Disability, Pain, and Well-Being in Juvenile Idiopathic Arthritis
por: Lal, Sham D., et al.
Publicado: (2011)

Being as Normal as Possible: How Young People Ages 16–25 Years Evaluate the Risks and Benefits of Treatment for Inflammatory Arthritis
por: Hart, Ruth I., et al.
Publicado: (2016)

CAPTURE-JIA: a consensus-derived core dataset to improve clinical care for children and young people with juvenile idiopathic arthritis
por: McErlane, Flora, et al.
Publicado: (2020)

Comparing Proxy, Adolescent, and Adult Assessments of Functional Ability in Adolescents With Juvenile Idiopathic Arthritis
por: Shoop‐Worrall, Stephanie J. W., et al.
Publicado: (2020)

Infection-Related Death among Persons with Refractory Juvenile Idiopathic Arthritis
por: Abinun, Mario, et al.
Publicado: (2016)

Effectiveness and safety of TNF inhibitors in adults with juvenile idiopathic arthritis
por: Kearsley-Fleet, Lianne, et al.
Publicado: (2016)

An in-depth analysis of young people's experience of their juvenile idiopathic arthritis (JIA) once receiving Etanercept
por: Livermore, P, et al.
Publicado: (2008)

Disease activity and disability in children with juvenile idiopathic arthritis one year following presentation to paediatric rheumatology. Results from the Childhood Arthritis Prospective Study
por: Hyrich, Kimme L., et al.
Publicado: (2010)

Juvenile idiopathic arthritis
por: Bhatt, Krupa H, et al.
Publicado: (2014)

Juvenile Idiopathic Arthritis
por: Barut, Kenan, et al.
Publicado: (2017)

Long‐Term Outcomes Following Achievement of Clinically Inactive Disease in Juvenile Idiopathic Arthritis: The Importance of Definition
por: Shoop‐Worrall, Stephanie J. W., et al.
Publicado: (2018)

Global prevalence estimates of three chronic musculoskeletal conditions: club foot, juvenile idiopathic arthritis and juvenile systemic lupus erythematosus
por: Dave, Mona, et al.
Publicado: (2020)

Depressive symptoms, pain and disability for adolescent patients with juvenile idiopathic arthritis: results from the Childhood Arthritis Prospective Study
por: Hanns, Laura, et al.
Publicado: (2018)

Development of a national audit tool for juvenile idiopathic arthritis: a BSPAR project funded by the Health Care Quality Improvement Partnership
por: McErlane, Flora, et al.
Publicado: (2018)

The Association Between Low Socioeconomic Status With High Physical Limitations and Low Illness Self‐Perception in Patients With Juvenile Idiopathic Arthritis: Results From the Childhood Arthritis Prospective Study,
por: Verstappen, Suzanne M. M., et al.
Publicado: (2015)

How common is clinically inactive disease in a prospective cohort of patients with juvenile idiopathic arthritis? The importance of definition
por: Shoop-Worrall, Stephanie J W, et al.
Publicado: (2017)

A UK study: vocational experiences of young adults with juvenile idiopathic arthritis
por: Lunt, Laura E., et al.
Publicado: (2019)

Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience
por: Mikola, Katriina, et al.
Publicado: (2022)

Trends in paediatric rheumatology referral times and disease activity indices over a ten-year period among children with juvenile idiopathic arthritis: results from the childhood arthritis prospective study
por: Mcerlane, Flora, et al.
Publicado: (2014)

Evidence for association of autoimmune genes with disabilty in juvenile idiopathic arthritis in a UK cohort
por: Cobb, J, et al.
Publicado: (2011)

Atherosclerosis in Juvenile Idiopathic Arthritis
por: Jednacz, Ewa, et al.
Publicado: (2012)

Cannot write session to /tmp/vufind_sessions/sess_c6jg0v10iv5ldjam4alno54lbf